Shy Stoma

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42
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947
Redondo

Just wondering if anyone has the same problem that I do. When I change my pouch, nothing flows out for hours. It's like the stoma is shy and everything stopped working. I always change first thing in the morning and within a half hour I have a light breakfast as always. But nothing seems to come out for hours. I don't know if the air gets to it or what happens?

Beachboy

What you describe is exactly how my stoma works.  I have a colostomy, and use a 2 piece Hollister system.  I change wafer every 7 days (change bags every couple of days).  Changed wafer this morning at 7:00am.  It's now 2:20pm, bag is empty, stoma looking clean and red.  Sometimes nothing comes out for 1 1/2 days.  Been like this for 8 months.  Does not seem to matter what I eat or when. 

At first I freaked out a little... thought I had a blockage.  But had no pain, stoma looked good, so I waited to see what would happen.  Next morning, output returned to normal.  

Stomas are "shape shifting" fickle little beasts.  After a shower, my little jewel will sometimes grow a big bump near the tip.  Other times it shrinks, exposing another bump area at the base.  Hours later.... All is back to normal. 

As long as your stoma is red and looks shiny you should be OK.  Any unexplained pain or different color, see a Stoma nurse or doctor right away.

Cheers,

Dan

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gentlejohn

Sounds like you have an ileostomy.  I have noticed the same thing.  It might be hours before it functions sometimes.  Other times it will function quickly.  Ileostomies function whenever they want to sometimes.  

Beachboy

It's now 5:30.... Still no output.  Business as usual.

Mysterious Mose
Reply to gentlejohn

Egads! Hours you say? I wish! 😰

Daniel

 
Living with Your Ostomy | Hollister
Beachboy

7:36... all quiet on the stoma front.  Wish my bag looked new like this all the time.

AlexT

Enjoy the time with no output and relax. Mine is like that too. I go a little bit here or there, then I’ll get a lot of output at once. Then, nothing for up to 2 days. 

Mysterious Mose
Reply to AlexT

I can understand how that can be with a colostomy. I did not think that an ileostomy would act that way. My output is constant. I'm sure that is related to my lifelong habit of grazing, rather than eating regular meals. But even if I limit my eating to regular meals, I still get at least a modicum of output between getting rid a meal and waiting for the next one to erupt. The gap is never hours, much less days. I would be interested in understanding the eating habits of people with ileostomies that go for hours with no output.

Daniel

Beachboy

It's 12:30 now in Commiefornia.

Stoma still silent, bag still looking new.   But like magma waiting to erupt... I'm gonna have a mini stoma volcano soon.

TerryLT
Reply to Mysterious Mose

I'm like you Daniel, I don't just eat three meals a day and probably don't go more than four hours without eating something, plus I have an ileo, so my stoma is pretty active all day and night.  I tend to eat late at night, not a great thing I know, but so be it.  The price I pay is having to empty two to four times in the night.  Changing my pouch is always a bit stressful, as I know I have a fairly small window of time before things start working.  Most times, my timing is pretty close.  I'll get my new pouch on, and within a couple of minutes it starts to erupt.  Whew!

Terry

TerryLT

High Redondo,  Your profile doesn't say whether you have a colostomy or an ileostomy.  It is common to go for hours without any output if you have a colostomy.   As others have said, as long as you are comfortable and your stoma looks healthy, nothing to worry about.

Terry

Mysterious Mose
Reply to TerryLT

I also tend to eat late at night and have to deal with burps and/or emptying during the night. This does not bother me, as I am up anyway, due to an aging bladder/prostate and arthritis pain. Adding the one task is no big deal. Just have to be extra careful if I am on the groggy side. :-)

I also try to curtail my night eating before appliance changing mornings. Am not always successful with that, but I try...

Daniel

 

infinitycastle52777

I have the opposite problem. When I change my bag my stoma can't wait to dirty the new bag and make itself all dirty again. A lot of times when I press the wafer down it squirts then too before I can get the bag on. LoL

What's your secret?

Lee

Beachboy

Finally at 9:00am or so (Tuesday), My little volcano became active again.  Had to empty my plastic containment device (AKA...bag) twice in one hour. 

So to recap:  Changed wafer Sunday morning, no output until Tuesday morning, even though I ate quite a bit.

This mirrors my routine before I was graced with an Ostomy.   Usually BM every 2-3 days.    

 

AlexT
Reply to Beachboy

Pretty much how mine works. I’ll get a little here or there but most comes out all at once and then I’m pretty much done for another 1-2 days. 

IGGIE
Reply to infinitycastle52777

If you eat a big volume of food you will have a big volume of shit.

AlexT
Reply to IGGIE

All depends on what kind of food you eat and how well it gets absorbed. 

Redondo
Reply to gentlejohn

Yes, I have an ileostomy. Normally, within a half hour to an hour after I eat, I have to empty it. Stoma looks good so I'm not worried. Actually I think it's best it doesn't flow for awhile after I change to give more time for the new pouch to adhere.

Thanks for sharing your info.

Redondo
Reply to Mysterious Mose

I usually have output quite regularly and at least 1/2 hour to an hour after eating. But, I'm trying to eat low calories and not eat too late at night so that I don't have to wake in the middle of the night to empty. I don't eat very many vegetables or fiber because I'm concerned about blockage which has happened to me when I do that.

Redondo
Reply to TerryLT

I have ileostomy. Everything looks healthy. I was just wondering if others are the same way.

Redondo

Thank you everyone for sharing your info. It was very helpful. Even though everything is healthy, I was just curious if others had the same experience.

Doe1mama
Reply to Mysterious Mose

My husband doesn't want any output from his ileostomy when he goes to the gym (3 days a week) or if we're going out for linner (3:30 meal). So in the AM he only has OJ, coffee and an ensure shake. This works for him. 

But when he's just eating normal meals it's kind of will nilly. Sometimes we feel like it rules our lives. There are times we think we have timing figured out and all at once it will start up during an appliance change. His ileostomy is certainly an adventure for us. 

Mom2Sons

I have an ileostomy and my output is constant. My stoma is healthy and I feel I am as well. I’ve become accustomed to emptying my bag as often as I can just to prevent a bulging look under my clothes and I seem to feel cleaner without having anything much in it. It doesn’t matter too much what I eat or how much….this little thing is a busy bug 😜.

IGGIE
Reply to AlexT

I am not talking about what you eat and how you eat it, but the Volume you eat . You eat big you shit big. 

Mysterious Mose
Reply to IGGIE

Eat Big
Shit Big

Would fit nicely on a t-shirt! Where do we send the royalty check? :-))

Daniel

Beachboy

Overheard at work this year:

Shit happens

I don't give a shit

Shit faced

Shit for brains

Dumb shit

Stupid shit

 

And shits' poopy derivatives:

Ass wipe 

Shit ass

Stupid ass

Tight ass

and my all time favorite...

Asshole.

 

 

Justbreathe
Reply to Mysterious Mose

Me too…jb

TerryLT
Reply to Mysterious Mose

LOL!  Sign me up for one of them.

IGGIE
Reply to Mysterious Mose

Consider it paid in full. Regards IGGIE

marshallkerry189
Reply to TerryLT

Mine is the same it is only none active if I don't eat at all but even when I drink it comes out I have two one on right side and left one is poop stoma and other is my ileostomy it just have mucus in my dressing 

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