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41,406 members
Nov 04, 2023

Surgery Finally Scheduled

The topic is about someone who has finally scheduled their proctocolectomy with an end ileostomy after a long wait. This surgery is set to take place on December 7, and they are experiencing a mix of emotions, including nervousness, fear, excitement, and hope. They are looking forward to relief from ulcerative colitis and the side effects of medication. However, they are also worried about potential issues like leaks, bag failures, and how their body will adjust. They are seeking prayers, stories, tips, and reassurance from others.

Here are some helpful pieces of advice and insights:

1. While leaks and full bag failures can happen, they are generally rare. Most people find that these issues are not common occurrences.

2. It's important to establish a consistent routine for changing and maintaining your ostomy. This can significantly reduce potential problems.

3. Be prepared for a learning curve. It will take some time to find the pouching system that works best for your stoma and skin. Don't rush the process.

4. Take advantage of free samples from suppliers and manufacturers. Try different seals, rings, and pouching systems to see what works best for you, and then add those products to your prescription list.

5. Expect to make some dietary adjustments and become familiar with new bathroom habits. Plan to experiment gradually with different foods and monitor how they affect your output.

6. Emotionally, waiting for the surgery can be more challenging than the recovery itself. Try to focus on the relief you will feel from the symptoms of ulcerative colitis and the side effects of medications.

7. Utilize available resources such as ostomy forums, YouTube demonstrations, and stoma nurses if possible. Community support can be invaluable in answering any questions you may have.

8. Take your recovery at your own pace. Most people find that they quickly reach a point where caring for their stoma becomes routine, and life starts to feel normal again.
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