This topic is about someone who has been living with a permanent ileostomy for three years and is now experiencing severe pain in the rectal stump. They are curious to know if this is a common issue among others with a similar condition. Here are some pieces of advice and insights shared by others:

1. Chronic pain in the rectal stump is generally not common. If the pain is persistent or getting worse, it is important to see a colorectal surgeon. They can check for possible issues like infection, Crohn’s disease in the stump, proctitis, or other serious complications.

2. Some suggest considering a surgery known as completion proctectomy or anal closure, often referred to as the “Barbie Butt” procedure. This surgery removes the rectal stump, which can help prevent mucus build-up and inflammation. It’s important to discuss with your surgeon whether you are a good candidate for this surgery, as well as the risks and what recovery might look like.

3. One person shared their experience of having their stump removed but keeping the anus. They had severe pelvic floor dysfunction, which made it difficult to pass mucus, leading to problems. They suggest checking if you can pass mucus, as not being able to might contribute to pain and pressure.

4. Gather as much information as you can. Read medical literature, prepare detailed questions, and consider getting second opinions from colorectal specialists before deciding on any further surgery.

5. A long-term ileostomy patient mentioned having Crohn’s disease in their stump, which caused leakage, bleeding, and proctitis, but not pain. This highlights that experiencing pain is unusual and should be taken seriously.