I'm wondering how many permanent ileostomy patients suffer from severe rectal pain? The pain internally where the rectal stump is left? I have suffered for 3 years with debilitating internal rectal pain.
Hope Filled
Mar 12, 2024 12:05 pm
IGGIE
Mar 12, 2024 12:26 pm
G-Day Hope, have you considered having your rectal stump removed and getting a Barbie Butt? I don't know if this is OK for your situation, but I would go have a talk with your surgeon. Regards, IGGIE
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Posted by: Puppyluv56
Hi Deb,
As you can see, the outpouring of love and support from this website will help you to find the strength to lift yourself up and out of your current emotional situation. I am lucky to have my husband by my side through all of this, so I will not even pretend to know how you feel and what you're going through alone. I do know that I have great friends on this site and in my life that have been by my side, and hopefully you have many by your side as well. You do have a lot of new friends here. Please feel free to talk through anything that is on your mind. We all go through a confidence deficit when we go through an ostomy surgery. Our body has been marred and your mind feels that way sometimes too. It is tough to move on, but you will. You will be stronger once you realize that you are still the beautiful woman you were prior to your surgery. Hopefully, you can reach out to a local support group and find some additional friends in your same situation. It always helps to have a sounding board wherever you find it!
Puppyluv
Past Member
Mar 12, 2024 2:28 pm
Hi there,
I did. I had my stump removed but left my anus, but I was never able to pass the mucus or slough. I have very, very severe pelvic floor dysfunction, so my stump had to be removed on account of nothing ever coming out, and it got stuck and built up so badly.
Are you able to pass mucus?
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Justbreathe
Mar 12, 2024 4:36 pm
Ouch! I have an ileostomy and never experienced any rectal pain (knock on wood), but pain is something that would cause me to seek information - good choice seeking information here! You've come to the right place for starters. Learn as much as you can - then seek the best recommendations for a surgeon. You will receive many comments, and a variety of experiences will be shared in your search. Arm yourself with questions (don't forget Google), and ONLY YOU should make the final choices/decisions. Best wishes - get answers and help, and hopefully, you can move forward and will feel better soon!
warrior
Mar 12, 2024 9:34 pm
Perm ilio here..I waited 7 years to possibly reconnect to left over stump. Never happened.
In my case, even with a large colon diseased and toxic, it was removed in 2016. We waited to control mucus output for those 7 years. Crazy, right?
Didn't happen. Crohn's present in stump.
There was never pain from the stump.
Leakage, yes. Blood, yes. Proctitis, yes.
Pain? Never should have pain from a stump.
Get that thing checked. You may have something more serious going on in a non-functional rectum like that.
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