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Mar 27, 2024

Need advice on urostomy options for keen cyclist, skier, runner, hiker ahead of bladder removal surgery

Topic Explanation
The forum discussion centers around an individual who is facing bladder removal surgery due to a recurrence of bladder cancer. The person is highly active, engaging in activities such as road biking, downhill skiing, running, and hiking, and is seeking advice on whether to opt for a continent (internal pouch) or incontinent (external pouch) urostomy. The goal is to understand the pros and cons of each option to maintain an active lifestyle post-surgery.

Advice and Insights

1. General Advice for Active Lifestyle:
- Core Strength: Increasing core strength before surgery can be beneficial for post-surgery activities.
- Support Systems: Use a good belt/support/hernia protection system for activities like skiing, hiking, running, and cycling.
- Hydration: Staying hydrated is crucial, especially for those with an ileal conduit.

2. Incontinent (External Pouch) Urostomy:
- Adjustment Period: There is an initial adjustment period to get used to the bag and manage complications like fit and sticking.
- Activity Compatibility:
- Activities such as scuba diving, triathlons, pickleball, swimming, and mountain biking are feasible.
- Regularly emptying the bag is important to prevent infections.
- A bedside bag can be used at night to manage urine flow.
- Travel Tips: Always carry extra supplies when traveling, as availability can vary by location.
- Maintenance: Change the appliance every few days and the bag daily to avoid infections.
- Placement of Stoma: Discuss with the surgical team about the optimal placement of the stoma for comfort and convenience during activities.

3. Continent (Internal Pouch) Urostomy:
- Pros:
- No external bag, which can be more discreet.
- Reduced amount of supplies needed.
- Cons:
- Requires a larger section of the intestine, which can affect nutrient absorption.
- Needs regular emptying on a strict schedule, which can disrupt sleep.
- Involves inserting a catheter, which can be challenging over time and increase the risk of ulcers or infections.
- Uric acid can penetrate bowel tissue into the bloodstream over time.

4. Personal Experiences:
- Positive Outcomes: Many individuals report being able to return to an active lifestyle post-surgery, including activities like fishing, camping, and working
See full discusison
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