Since I can't get into the local nurse until Aug 1st, I went with a video call with an ostomy nurse from Convatec, and I cannot recommend it highly enough! She was great, saw what I was dealing with, and flat out said, “That isn't a stoma, that's basically a fistula” and had some ideas of how I can deal with it. She helped me measure the stoma so that I cut the hole the right size (I was cutting it too big) and thinks my skin will heal if I can just keep the output off my skin. Since no amount of convex will ever get my stoma to stick out, she said less convex and more bendable might be the solution. So, she will be sending me a less convex product that will bend much better with my stomach, as that's where my leaks are happening, where I bend. She also advised about the toilet paper in the bottom of the bag to fight the suction effect. I felt really seen and heard, and that was so helpful. Highly recommend if you are in need of help!
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Posted by: Dianne
You are so right. I will never forget this website and the people who have helped me. I had my reversal in January of 2014. I try and come on this website weekly to see if I can help or encourage other individuals get through the day-to-day process of life.
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