Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
40,882 members
Mar 30, 2024

Questions to Ask Before Loop Ileostomy Surgery for Constipation and Pain

Topic Explanation

The forum discussion revolves around a user seeking advice and insights before undergoing a loop ileostomy surgery to address life-long slow transit constipation and pelvic floor dyssynergy, compounded by pudendal neuralgia from endometriosis. The user has failed conservative treatments and is hopeful that the surgery will improve their quality of life. They are preparing for their first meeting with a stoma nurse and are looking for questions to ask and things to consider before the surgery. The user also has hEDS and POTS, which could complicate the surgery and recovery.

Advice and Insights

1. Pre-Surgery Assessments and Tests:
- Ensure a high-risk anesthesia assessment is done, especially if you have conditions like EDS.
- Consider an echocardiogram to rule out vascular EDS and assess heart health.
- A sitz marker test can help determine which parts of the colon have dysmotility.
- Anal manometry and MRI defecography tests can provide insights into pelvic floor dysfunction.

2. Surgical Considerations:
- Discuss the type of reversal options available and the potential for keeping the colon healthy for future irrigation and scoping.
- Understand that a loop ileostomy allows for easier reversal if needed.
- Consider the benefits of allowing the new connection to heal before putting it to use, as it may fare better overall.

3. Post-Surgery Concerns:
- Be aware of potential dehydration issues post-surgery, especially with conditions like POTS.
- Prepare for the mental toll and lifestyle changes post-surgery; having a support system is crucial.
- Understand that feeling anxious or like you are "giving up" is normal, but reframing it as a new chapter can help.

4. Personal Experiences and Tips:
- Some users experienced a significant improvement in quality of life after a loop ileostomy, even if multiple surgeries were needed.
- Having a good medical team that understands atypical needs is essential.
- Be prepared for a period of increased fatigue before surgery as the body conserves energy for recovery.

5. Additional Resources and Support:
- Engage with others who have had similar experiences for support and advice.
- Utilize forums and discussion groups to gather more information and personal stories.

6. Pain Management:
- Be cautious with treatments like Botox injections for pelvic floor issues, as they can be painful and may not
See full discusison
Gray Logo for MeetAnOstoMate
Why Join MeetAnOstoMate?

This is a remarkable community of 40,882 members.

You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.

And it's not all about ostomy - there is friendship and relationships too.

Privacy is very important - your profile is not visible to the outside world.

Join Us

Popular Topics

Cbd/Weed Gummies for Sleep Issues: Any Experiences?
Irritation at Bottom of Stoma: Anyone Used Mupirocin Ointment?
Chewing Tips for Colostomy Newbies: What Works?
Advice Needed for Ostomy Pouch and Barrier Ring Issues
Gassy Ostomy Bag After Adding Fiber: Should I Continue?
Summer Drinks
The worst thing……
MRI and Ostomy Bag Concerns
HOSPITAL STAY UPDATE
Golfing with a Colostomy: Seeking Support Belt Advice

New Topics

A MYSTERY
🔮 These are the Horoscopes for the week of May 12, 2025
Ileostomy Pain After Eating: Seeking Advice
Ostomy Bag Recommendations for Higher Ileostomy Placement
Preventing Pancaking and Pouch Leaks: Tips and Solutions
FLIP FLOPS
B. Withers - Be Kind 6
BILL MAULDIN
Content Poseidon
Earl
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Join
Currently Online: 48  
↑