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Mar 30, 2024

Questions to Ask Before Loop Ileostomy Surgery for Constipation and Pain

This topic is about preparing questions for an elective loop ileostomy, a surgical procedure recommended for a 34-year-old dealing with slow-transit constipation and pelvic floor dysfunction. The person has tried various treatments without success and is now considering this surgery to alleviate pain related to constipation. Here are some helpful insights and advice for someone in a similar situation:

1. Pre-operative evaluations:
- Consider a cardiac work-up, like an echocardiogram, to rule out any complications related to vascular EDS before undergoing major surgery.
- High-risk anesthesia clinics can help plan for challenges like difficult IV access, joint protection, and hydration management, which is crucial for those with POTS.

2. Surgical strategy:
- Keeping the colon in place with a loop ileostomy allows the new connection to heal before any potential reversal, which can be beneficial.
- Discuss with the surgeon the possible reversal options, such as ileorectal anastomosis or total proctocolectomy, and what tests might be needed to make these decisions.
- Ensure that a colostomy was considered and review sitz-marker results to confirm the issue is with colon motility and not small-bowel or outlet obstruction.

3. Post-operative expectations:
- It's common to experience profound fatigue and increased sleep for several weeks before major elective surgery as the body prepares for recovery.
- Be aware of the higher risk of dehydration with an ileostomy and plan for oral rehydration solutions, electrolyte monitoring, and clear discharge instructions.

4. Coping and mindset:
- Try to view the stoma as a new beginning rather than "giving up."
- Build a support network early, including a stoma nurse, online ostomy communities, and peers with similar conditions.

5. Lived experiences:
- Some individuals with colonic inertia or pelvic-floor dysfunction have reported significant improvements in quality of life after switching from a colostomy to a loop ileostomy, eventually opting for a completion colectomy.
- Several women with hEDS, pelvic-floor trauma, or autoimmune complications have successfully undergone colectomy with a temporary loop ileostomy, followed by either reversal or a permanent stoma.

6. Pain-management tips:
- Pelvic-floor Botox can be very painful if not done under adequate anesthesia; some patients may require general anesthesia as they do not tolerate conscious sedation well.
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