The topic is about preparing for a total colectomy with a Hartmann pouch and a permanent ileostomy. This involves understanding the surgery process, managing expectations about the stoma, and learning how to accept and live with it. Here are some helpful insights and advice:
1. Surgery Duration
- The procedure typically lasts between 5 to 7 hours. If it starts laparoscopically or robotically, it might be shorter, but could switch to an open surgery if there are complications. It's a good idea to ask your surgeon about the planned approach.
2. Stoma Construction
- Ensure your stoma protrudes at least 1 inch (about 25 mm) to avoid leaks and skin issues. Discuss the ideal placement with your stoma nurse, considering your clothing preferences and lifestyle.
3. Early Recovery and Learning Care
- A home-health or stoma nurse will usually help with the first few bag changes. Many people start doing their own changes within the first few weeks. Changing the appliance daily at first can help you get used to it and build confidence. Be prepared for changes in the stoma's size and shape during the initial months.
4. Mental Acceptance
- Feeling uneasy at first is normal, but most people adjust within weeks or months. Watching YouTube videos on stoma care before and after surgery can help ease anxiety. Giving your stoma a name and talking about it with family and friends can make it feel more normal. Stay connected with support groups and professionals for emotional support.
5. Pouch Visibility and Clothing
- With the right clothing and an empty pouch, it can be nearly invisible. However, it might show when fuller or under tighter clothes. Experiment with different garments to find what works best for you. Some people choose lower-rise pants or looser shirts, and over time, confidence grows, making occasional bulges less concerning.
6. Products and Resources
- Consider using a two-piece Hollister pouching system. Watching YouTube channels that focus on positive stoma care can be very helpful.
7. General Tips
- Remember, the stoma is essential for your health and allows you to stay active. Focusing on this can aid in acceptance. Expect to have drains, IV lines, and catheters after surgery, but these are temporary. As you heal, changing the bag will become quicker and easier, eventually taking just 5 to 10 minutes.
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