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Jul 30, 2024

Duration and Recovery Tips for Total Colectomy Surgery

Topic Explanation:
The original poster (OP) is preparing for a total colectomy surgery, which will result in a permanent ileostomy and a Hartman pouch. They are seeking advice on the duration of the surgery, what to expect post-surgery, and tips for accepting and managing their stoma, as they are currently feeling squeamish about it.

Advice and Insights:

- Surgery Duration and Procedure:
1. Surgery duration can vary. Some users reported their surgeries lasting between 5 to 7 hours, depending on complications such as scar tissue or the need to switch from laparoscopic to open surgery.
2. Laparoscopic or robotic surgery tends to be quicker and allows for faster recovery, but sometimes surgeons need to switch to open surgery if complications arise.
3. It's important to discuss with your surgeon how they plan to perform the surgery and how long it might take.

- Post-Surgery Expectations:
1. When you wake up, you will have the stoma and the bag, and possibly other medical devices like drains or catheters, depending on your specific case.
2. The stoma should protrude from the skin by at least 1 inch to avoid leakage and sealing issues. A flat stoma can cause complications.
3. The stoma will change in size and shape over time, swelling initially and then shrinking.

- Stoma Acceptance and Management:
1. Many people initially feel repulsed or anxious about their stoma, but over time, it becomes a normal part of life. It's common to feel squeamish at first, but with practice, it becomes routine.
2. Watching YouTube videos of stoma care can help desensitize you and prepare you for managing your stoma.
3. Home health nurses or stoma nurses will guide you through the process of caring for your stoma, and they can help you overcome any squeamishness.
4. Changing your bag daily in the beginning can help you get used to seeing and handling your stoma.
5. Naming your stoma can help normalize it and make it feel less intimidating.

- Clothing and Stoma Visibility:
1. The visibility of the stoma and bag depends on your clothing choices. With the right clothes and an empty pouch, it can be nearly invisible, but a full pouch can
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