This topic is about someone who has been dealing with a temporary loop ileostomy due to Crohn’s disease affecting their entire colon. They are experiencing persistent pain, bleeding, and diversion colitis, and are looking for others who have had similar experiences to share their insights. Here are some of the experiences and advice shared by others:

- The person has been experiencing daily lower-abdominal pain and the passage of bloody mucus several times a day, which has been increasing along with more pain. They also have anal soreness and inflammation. A recent colonoscopy showed both diversion colitis and active Crohn’s disease. Despite increased infusion therapy and oral biologics, symptoms persist.

- They are being treated at University Hospitals and have not had a bowel resection yet. The pain is too intense for rectal suppositories, and while Remicade doses are being increased, prednisone is becoming less effective. A colectomy is being considered as a potential solution.

Experiences with surgery:
1. One person had a subtotal colectomy and loop ileostomy done together, which stopped rectal bleeding post-operation.
2. Another person transitioned from a temporary ileostomy to a permanent one over seven years, ending with a proctolectomy. They suggest considering definitive surgery sooner when the colon is severely inflamed and medications are not working.
3. A recent colostomy patient, who was suspected of having diverticulitis, reports no bleeding or pain and expects a reversal, highlighting that outcomes can vary.

Medication suggestions:
1. Canasa (mesalamine) suppositories were suggested for rectal inflammation, if they can be tolerated.
2. It’s important to closely monitor biologic levels, as persistent pain and bleeding may indicate that current biologics are ineffective, and other drugs or surgery should be discussed.

Topical/skin care:
1. Calmoseptine ointment is recommended for perianal soreness and can be found at places like Walgreens, DrugMart, and Meijer.

General guidance:
1. Stay in regular contact with the GI/surgical team, as six months of ongoing symptoms may require a reassessment of the treatment plan.
2. Consider the side effects of medications against the possibility of surgical solutions, as many find their quality of life improves after a colectomy when the disease is uncontrolled.
3. Emotional support is important, and others acknowledge the psychological toll, encouraging patience and persistence while seeking the right therapy.