This topic is about managing some challenging issues that can arise with an ileostomy, specifically a parastomal hernia, a prolapsed stoma, and severely delayed output. Here are some helpful insights and advice for navigating these concerns:
1. Seek the right specialist and keep advocating for yourself:
- Start with a colorectal surgeon, and if your concerns are dismissed, continue searching until you find someone who listens.
- Consider consulting a general surgeon experienced in repairing parastomal hernias for another opinion or to discuss options like relocating or revising the stoma.
- University-based medical centers, such as the University of Pennsylvania in Philadelphia or Ohio State, have been recommended by others who received successful care.
2. Surgical experience shared:
- One person shared their experience of having a muscle-ring narrowing procedure, known as "stoma hernia repair/abdominal wall reconstruction," performed by Dr. Benjamin Poulose at Ohio State University. Six months post-surgery, they reported no recurrence, even with heavy weight training.
3. Non-surgical hernia management:
- Many doctors suggest delaying surgical repair unless pain or obstruction is severe, as long-term success rates can be low.
- Wearing a dedicated ostomy or hernia support belt can help contain the bulge and reduce strain.
4. Exercise modifications:
- Continue exercising but avoid activities that increase intra-abdominal pressure, such as heavy barbell squats, traditional sit-ups, and steep-grade lawn mowing.
- Opt for exercises like planks, leg lifts, light-to-moderate resistance bands, leg extensions/curls, and mowing across slopes rather than up and down.
5. Output and hydration tips:
- An 8-hour delay in output with an ileostomy is not typical, so keep seeking answers through imaging or scoping to rule out any mechanical blockage.
- Ensure you maintain a high fluid intake, including water and clear liquids, to support motility and prevent dehydration.
6. General encouragement:
- Trust your instincts about what feels wrong, and remember that persistent self-advocacy is crucial.
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