Adjusting to life with a stoma can be quite a journey, especially when it comes to finding an ileostomy bag that doesn’t leak or “pancake.” If you’re navigating this path, you’re not alone. Here’s some advice and insights from others who have been in your shoes:

- The poster, who is about 7 to 8 weeks post-surgery from an ileostomy, is having trouble with bags that either leak or don’t fit well. They’ve tried several brands without success and are looking for recommendations from others with similar experiences.

- They’ve already tried Coloplast and ConvaTec one-piece systems, which resulted in leaks. Currently, they’re testing a two-piece ConvaTec system but are finding it difficult to use and still experiencing issues.

Here are some suggestions and tips that might help:

1. Brand and System Suggestions:
- Many find the Hollister two-piece “snap-on” system to be reliable and leak-free. Some use a standard flat wafer, while others prefer a soft convex one-piece pouch.
- The Coloplast Sensura Mio two-piece system is recommended by both colostomy and urostomy users. If it works for you, it’s worth sticking with.
- Salts barrier rings, available in the UK and Canada, can protect your skin and extend the wear time when used with Hollister one-piece soft-convex pouches.
- If you have adhesive allergies, Hollister Ostomy Care can provide assistance and samples if you contact them directly.

2. Fitting and Accessory Tips:
- It’s important to measure your stoma frequently during the first year, as size changes can lead to leaks if the wafer opening isn’t right.
- Many people with an ileostomy find that barrier rings and/or convex wafers help prevent leaks and pancaking.
- Proper application technique is crucial. An ostomy nurse or local support group can help assess the fit and teach you some useful tips.

3. Pancaking and Output Management:
- Adding a barrier ring or switching to a convex wafer can often stop pancaking by keeping the pouch open and directing output downward.
- Tracking your diet can help identify foods that thicken output or create gas, which can be useful in managing your stoma.

4. Emotional and Practical Coping Ideas:
- Keeping a record of your milestones, whether through quilting patches, writing rhymes, or other creative outlets, can help you see your progress over time and maintain a positive perspective.

Remember, finding the right system can take time, and it’s okay to seek support and advice from others who understand what you’re going through.