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Mar 19, 2025

Are Ostomy and Colostomy Issues Connected?

This topic is about someone who has been through a lot of medical challenges and is now dealing with issues related to their ileostomy. They are trying to understand if their past surgeries, including the removal of the sigmoid colon and having a colostomy, are linked to the problems they are experiencing now.

Here's a bit of their medical journey:

- In October 2015, they had pancreatitis and a burst bowel, leading to the removal of the sigmoid colon and the creation of an end-colostomy. They were also diagnosed with chronic leukemia.
- In February 2016, they underwent a bowel re-section.
- In 2018, they had a large hernia repair.
- In January 2024, they were diagnosed with acute myeloid leukemia (AML) and T-cell pro-lymphocytic leukemia (TPLL). They had a severe reaction to chemotherapy, resulting in sepsis, septic shock, and bacteremia.
- In March 2024, they had emergency surgery for a bowel obstruction, which led to the creation of a permanent ileostomy.

Since the ileostomy, they have been experiencing constant pain, two major post-operative infections, and frequent issues with their ostomy appliance. They are questioning if the removal of the sigmoid colon and the previous colostomy are contributing to these current difficulties.

Here are some additional details and concerns they have:

- They had no issues with the earlier colostomy, but the new ileostomy has been very challenging.
- They need to empty their pouch 8 to 10 times a day, with two leaks occurring overnight.
- They feel nauseous before and after eating and suspect that the absence of the sigmoid colon might be affecting their digestion.
- Walking even a block worsens their symptoms, and they feel as if something has moved internally.
- They are struggling to find doctors willing to investigate these issues and are hopeful that an upcoming specialist visit will include an immediate scan.

Some advice and insights from others include:

1. Several people have had a sigmoid-colon resection and colostomy with few or no issues related to appliances or diet. One person mentioned only occasional inflammation of the rectal stump, which is a common issue after such surgeries.
2. It was emphasized that stomas, whether past or present, are unlikely to be the cause of leukemia-related complications. Cancers can arise unpredictably and are not the patient's fault.
3. Another person with a colostomy due to a traumatic colon puncture reported normal eating and no gastrointestinal problems, highlighting how individual responses can vary widely.
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