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Jun 06, 2025

Managing Colostomy and Fibromyalgia Together: Seeking Advice

Managing a colostomy alongside fibromyalgia can be quite challenging, especially when dealing with the pain and fatigue that fibromyalgia brings. Here are some practical tips and insights that might help you navigate both conditions more smoothly:

1. **Behavior and Activity Pacing**
- On days when pain or fatigue is high, try to limit your activities to only what is necessary. Resting, engaging in quiet hobbies like reading or knitting, and taking short naps can help prevent symptom flare-ups.
- It's important to accept that some days will be tougher than others. Allow yourself to slow down without feeling guilty.

2. **Medications vs. Non-Drug Strategies**
- Some people find that certain fibromyalgia medications, especially those affecting serotonin, can worsen their symptoms. If this is the case, consider discussing lifestyle management options with your doctor.

3. **Hydration and Dietary Changes**
- Aim to drink at least 64 ounces (about 1.9 liters) of water each day, as dehydration can increase discomfort.
- Try to reduce or eliminate drinks with phosphates, like dark sodas. Even lighter sodas should be consumed only occasionally.
- Minimizing highly processed foods can help reduce inflammation and energy dips.

4. **Nutritional Supplementation**
- Consult with your healthcare provider about whether specific vitamins, minerals, or herbal supplements might be beneficial for you.

5. **Mind-Body and Gentle Exercise Options**
- Practices like meditation, yoga, and gentle stretching can help improve pain management and boost mental resilience.

6. **Diagnostic Considerations**
- While there is no single test for fibromyalgia, an elevated ANA (antinuclear antibody) titre might be present in some patients and can be part of the diagnostic process.

7. **Emerging Treatments**
- Some individuals have found relief through stem-cell therapy, which is offered by certain US-based companies specializing in fibromyalgia. This might be worth discussing with your medical team.

8. **Emotional Encouragement**
- Maintaining a positive outlook and connecting with supportive communities can be incredibly helpful when dealing with the challenges of leaks, pain, or fatigue.
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