This topic is about dealing with the challenges of a severe parastomal hernia while waiting for surgery. A parastomal hernia can be quite painful and affect daily activities like walking and sleeping. Here are some helpful tips and advice for managing this situation:

1. Pre-surgery coping:
- Consider using a well-fitting hernia support belt. This can help reduce pain and prevent the hernia from getting worse until you have surgery.
- If you notice people staring, a simple explanation like, "It’s a hernia; surgery is soon—wish me luck," can help ease any awkwardness.

2. Surgical considerations:
- When discussing the surgery with your surgeon, ask them to reinforce the repair carefully. This could involve stitching, stapling, or using mesh to help prevent the hernia from coming back.
- Some people have found success with robotic or laparoscopic techniques combined with mesh reinforcement, and they reported no postoperative infections.

3. Post-surgery recovery tips:
- Be prepared for some soreness in the weeks following surgery, but know that gradual improvement is normal.
- Once your doctor gives the go-ahead, start taking short, frequent walks. This can help speed up healing and reduce the risk of complications.
- Understand that pain can make you feel irritable, so having support and setting realistic expectations can be very helpful.

4. General encouragement:
- Chronic pain can be exhausting and make you feel isolated, especially at night. Try to seek support from friends, family, or support groups.
- Many people in the community are wishing you a smooth surgery and a quick recovery.