This topic is about a young woman named Tanika who is preparing for a laparoscopic ileostomy surgery scheduled for October 23. She has been dealing with Ulcerative Colitis since 2020, and after trying various medications without success, surgery has become the next step. Tanika is understandably anxious about the procedure and its aftermath. Here are some insights and advice that might help ease her concerns:
1. Consider seeking a second medical opinion before proceeding with irreversible surgery. There might be other biologic medications like Skyrizi, Entyvio, Stelara, or Humira that could be options for some individuals.
2. Younger patients often experience quicker healing, and many people have returned to full, active lives after surgery.
3. The placement of the stoma is crucial:
- Work with a stoma nurse to determine the best location while standing, sitting, and bending.
- Ensure the stoma is at least 3–4 inches away from the navel or any skin fold/waistband, and choose the flattest surface possible.
- If you have extra weight, ask the surgeon to position the stoma so it clears abdominal folds.
4. Discuss with your surgeon the specifics of the surgery, such as the length of bowel to be removed and whether the colon and rectum will also be taken out to reduce cancer risk and mucus issues.
5. Obtain free samples from different appliance manufacturers and test adhesives before surgery, as what works for one person may not work for another.
6. Make sure you receive in-hospital teaching, written instructions, and starter supplies, and arrange for home-care follow-up.
7. Post-operative pain from keyhole surgery is typically moderate and short-lived, with many people feeling immediate relief compared to the pain from Ulcerative Colitis.
8. Regarding activity and exercise:
- For the first 6–8 weeks, avoid lifting anything heavier than a kettle and try to walk daily.
- Once healed, you can resume activities like weightlifting, running, horseback riding, swimming, martial arts, or contact sports. Use an abdominal/anti-hernia wrap or a hard stoma guard for impact sports.
- Protect your abdominal wall long-term with support belts to prevent parastomal hernias.
9. Diet can vary from person to person. Start with a low-fiber diet and gradually experiment. Some people avoid leafy greens, skins, seeds, and nuts, while others can eat everything. Chew thoroughly, stay hydrated, and be aware that foods can change the color of your output.
10. An ostomy can eliminate the daily pain, urgency, and medication side effects of Ulcerative Colitis, often leading to a significant improvement in quality of life.
11. Mental preparation is important. Plan ahead, keep notes, and ask questions. A positive outlook and community support can make adaptation easier.
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