This topic is about sharing humorous yet practical tips for people with ostomies, using a playful "Top 10" list inspired by David Letterman. It's designed to offer guidance and support, especially for those who are new to living with an ostomy. Here are some of the key pieces of advice and insights shared:
1. Remember that everyone is different. Try out suggestions, but understand that what works for one person might not work for you. Always make sure to chew your food thoroughly.
2. When seeking help, be specific about your type of stoma (ileostomy, colostomy, urostomy) and the reason for it. Vague questions like "I have a rash" don't provide enough information for others to help effectively.
3. Make use of the site's resources, such as "Collections" and the "Ask Osty A.I." tool, for quick and concise information to start your research.
4. If it helps you cope, feel free to name, talk, or even sing to your stoma.
5. It's okay to get your pouch wet. Showering without any appliance is known as "naked showering."
6. Before responding to a discussion, read the entire thread to avoid repeating advice. If someone has already shared your thoughts, simply agree and show your support.
7. Avoid using your email address or full real name as your username to protect your privacy and avoid spam.
8. When replying to posts, use the correct button: "Reply to comment" for responding to the last commenter, and "Reply" for addressing the original poster. This helps prevent confusion.
Additional thoughts and questions include:
- The originator is curious about who qualifies as a "newbie," as they still feel new after nine years.
- They notice many new members have blank profiles and wonder if this is now a default setting. They find it challenging to provide tailored advice without basic demographic information.
- A personal tip from the originator: since 2016, they have stopped sitting on the toilet to empty their pouch. Instead, they use a container, which saves on knee strain, toilet paper, and reduces odor.
Some additional advice and insights:
- Be prepared for the emotional aspects of recovery, such as altered body image, loss of sexual function, PTSD, fear of recurrence, and loneliness, especially after surgery, radiation, or chemotherapy.
- Fill in your profile with basic information like age, gender, and history. This helps others give you more personalized advice on clothing, products, or lifestyle.
- If you're feeling isolated, reach out to fellow members. They are often willing to have one-on-one conversations about any aspect of your ostomy journey.
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