This topic is about someone who is facing challenges in affording ostomy supplies due to limited insurance coverage. They have an ileostomy and a condition called Ehlers-Danlos Syndrome (vascular type 4). After trying several pouching systems, they found ones that work well, but their insurance considers these products too expensive, making the co-pay unaffordable. They are seeking advice on how to obtain these supplies at a more affordable cost.

Here are some helpful suggestions and insights:

1. Low- or No-Cost Supply Sources
- Osto Group provides donated ostomy products to those who are uninsured or under-insured. You can contact them and ask for Marian if you need specific items.
- OstoStore.com offers wholesale pricing. You can email them for quotes if an item you need is not listed.
- AllegroMedical.com has discounted ostomy products.
- eBay can be a good place to find your favorite brands at up to 50% off retail prices, but remember to plan ahead for shipping times.
- Local ostomy support groups, hospital WOC nurses, and fellow ostomates often have extra supplies or manufacturer samples they can give away for free.
- Some forum members have offered free products like Convatec Sur-Fit Natura convex wafers, Convatec drainable or roll-up pouches, Eakin Cohesive seal rings, Hollister belts, Convatec Stomahesive paste, and REMOVE adhesive-remover wipes.

2. Work Directly With Manufacturers
- Contact companies like Coloplast, Hollister, and ConvaTec. They have patient-assistance or income-based programs that can provide up to six months of supplies.
- Request additional free samples to try out less expensive systems.

3. Insurance & Medicare Strategies
- Obtain a "Letter of Medical Necessity" from your surgeon or gastroenterologist. This letter should explain why you need specific items or higher quantities each month.
- Submit this letter through your supplier to the insurance company. If they deny your request, file a grievance or appeal and keep trying.
- For Medicare, the supplier will bill with the letter. Some advocacy groups and pharmacies in Wisconsin are working to increase the current 20-pouch limit to 30–40 per month.

4. Extend Wear Time / Reduce Usage
- Colo-Majic Flushable Liners can help one pouch last several days. They cost about $63–65 for 300 liners through C&M Ostomy Supplies and are compatible with colostomies and many ileostomies.

5. General Tips
- Seek help from a WOC nurse to document your needs, enroll in manufacturer aid programs, or secure emergency supplies.
- Keep written records and escalate your case to higher insurance authorities if necessary. Sometimes, making a fuss can lead to better outcomes.