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May 22, 2009

Ulcerative Colitis Manifesting Externally Around Stoma?

This topic is about dealing with ulcerative colitis-related peristomal skin ulcers, which might be a condition known as Pyoderma Gangrenosum. An individual with an ileostomy has experienced painful ulcers around their stoma, which were diagnosed as a manifestation of Ulcerative Colitis. These ulcers were treated with systemic steroids, but the person is seeking alternative treatments due to the side effects of oral steroids. They are also exploring the possibility of a connection between their eye problems and Ulcerative Colitis. Here are some insights and advice that might be helpful:

1. Consider Pyoderma Gangrenosum (PG):
- PG is a complication of Inflammatory Bowel Disease (IBD) and can appear around the stoma, as well as on arms or legs.
- It typically presents as purplish, bleeding, and painful ulcers that can interfere with the adhesion of ostomy pouches.
- Diagnosis is mainly clinical, as biopsies are often inconclusive, though they may still be performed.

2. Treatment options for PG:
- The first line of treatment is usually oral corticosteroids like prednisone.
- If oral steroids are not well-tolerated, high-potency topical steroids can be used, such as a steroid spray applied twice daily, which has helped some people heal in about four weeks.
- Biologic agents like Remicade (infliximab) are also options.
- It is beneficial to consult a dermatologist or an ostomy wound-care nurse who has experience with IBD complications.

3. General management tips:
- Medical professionals have varying levels of knowledge about IBD, so educating oneself and seeking second opinions can be crucial.
- Even after a colectomy, Ulcerative Colitis can still cause systemic issues affecting the skin, joints, and eyes.

4. Emotional support:
- Encouragement from others can be very helpful. Being informed and proactive in care can lead to better health and increased confidence.
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