Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,422 members
Jun 23, 2009

Seeking Surgeon for Urostomy Conversion and Reconstruction

This topic is about someone seeking medical specialists to help with a complex set of surgeries. The person was born with a condition called bladder exstrophy and has been living with a urostomy since 1971. Now, due to complications like kidney disease, kidney stones, and urinary tract infections, she is looking to make some changes. Here's what she's hoping to achieve:

1. Convert her current urostomy to a continent diversion, which could be a Miami pouch, Indiana pouch, Kock pouch, or using Sweede’s technique.
2. Remove extensive scar tissue and adhesions in her abdomen.
3. Undergo vaginal reconstruction related to her congenital condition.

She is particularly concerned about finding surgeons who can perform all these procedures at one medical center, ensuring her insurance will cover the costs, and confirming her eligibility for surgery despite her kidney issues and history of stones. She is also looking for doctors who won't be deterred by her previous surgeries or the presence of adhesions.

In a follow-up, she emphasizes the urgency of finding a reconstructive urologist and nephrologist who are willing to take on her case. She is 5'3" and weighs 125 pounds, and aside from her kidney disease and stone history, she is otherwise healthy. Past surgeons have been hesitant due to the perceived risks, so she is seeking alternatives and assurance of insurance coverage.

Some advice and insights offered include:

- Consider reaching out to Duke University Medical Center, as it is known for having surgeons experienced in complex urinary reconstruction.
- Emotional support is important. It's reassuring to know that skilled surgeons are out there, and it's worth persisting until a compassionate and qualified team is found.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,422 members.

“I found real people, real humor, and answers I couldn’t get anywhere else.”

“The support here impressed my husband’s medical team - they plan to recommend it.”

“This community saved me when I thought I was a freak. Now I’m thriving.”

“Thank god for this site - I finally knew what to ask my surgeon.”

Join Free

Popular Topics

Is Gum Chewing Bad for Ostomates?
Stoma Surgery Bringing Confidence and a Fresh Start
Newbie
Best Parastomal Hernia Belt for Women with a Muffin Top?
BACK IN THE SAME BOX
Minimalist - Journey to Less Is More Quest
HORNSWOGGLED
One-Year Stomaversary!
Hello new friends!
How do you clean the end of your drainable bag?

New Topics

Ostomy Questions
A CAT & A CLOCK
Stoma Surgery Bringing Confidence and a Fresh Start
AN ORANGE GROVE
Pants for Ostomy: High-Waisted, Comfortable, and Stylish
Less of a Tip, More Like Catharsis
Ostomy Belt Rash: Seeking Advice and Solutions
First Colonoscopy Through My Colostomy Is Done!
Hello from Georgia
B. Withers - Be Kind 151
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑