This topic is about someone seeking medical specialists to help with a complex set of surgeries. The person was born with a condition called bladder exstrophy and has been living with a urostomy since 1971. Now, due to complications like kidney disease, kidney stones, and urinary tract infections, she is looking to make some changes. Here's what she's hoping to achieve:
1. Convert her current urostomy to a continent diversion, which could be a Miami pouch, Indiana pouch, Kock pouch, or using Sweede’s technique.
2. Remove extensive scar tissue and adhesions in her abdomen.
3. Undergo vaginal reconstruction related to her congenital condition.
She is particularly concerned about finding surgeons who can perform all these procedures at one medical center, ensuring her insurance will cover the costs, and confirming her eligibility for surgery despite her kidney issues and history of stones. She is also looking for doctors who won't be deterred by her previous surgeries or the presence of adhesions.
In a follow-up, she emphasizes the urgency of finding a reconstructive urologist and nephrologist who are willing to take on her case. She is 5'3" and weighs 125 pounds, and aside from her kidney disease and stone history, she is otherwise healthy. Past surgeons have been hesitant due to the perceived risks, so she is seeking alternatives and assurance of insurance coverage.
Some advice and insights offered include:
- Consider reaching out to Duke University Medical Center, as it is known for having surgeons experienced in complex urinary reconstruction.
- Emotional support is important. It's reassuring to know that skilled surgeons are out there, and it's worth persisting until a compassionate and qualified team is found.
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