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Mar 17, 2012

Urge to Sit on Loo with Ileostomy - Need Ideas!

Living with an ileostomy can bring about some unexpected experiences, even years after the surgery. One such experience is the persistent urge to sit on the toilet, as if needing a bowel movement, despite having an ileostomy. If you're facing this, here are some insights and advice that might help:

- It's common to experience a "phantom-rectum" sensation. This is when your brain misinterprets signals and creates a false urge to evacuate. Often, just sitting on the toilet for a minute or two can help the sensation pass.

- Sometimes, the urge can be due to leftover bowel contents or mucus production in the remaining colon or rectal stump:
1. The colon continues to secrete mucus, and a buildup can create pressure, leading to the urge to push.
2. Passing small mucus "plugs," occasionally with a bit of blood, is normal. Push gently and don't be alarmed.

- Enemas, if approved by your doctor, might help. One person's surgeon recommended three home enemas on consecutive days, which cleared old contents and stopped the urges. It's important to discuss this option with your physician before trying it.

- Anti-inflammatory or clearing suppositories can be beneficial for those with a rectal stump:
1. Hydrocortisone suppositories can reduce local inflammation and ease the urgency.
2. Salofalk (mesalazine) suppositories, taken in one or two doses, can help clear out residual mucus.

- For non-medication comfort measures:
1. Taking a very warm bath can help relax pelvic muscles.
2. Walking around can often lessen the sensation more effectively than sitting for long periods.

- It's reassuring to know that many long-term ostomates experience this urge even years after surgery. It usually passes quickly and is rarely a sign of complications. However, if the episodes are persistent or painful, it's a good idea to talk with your stoma nurse or surgeon.
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