This topic is about a person who has been dealing with severe Ulcerative Colitis for five years. After trying various medical treatments and experiencing difficult side effects from steroids, they are considering having surgery to create an ileostomy. They are reaching out to others who have undergone similar surgeries to understand what to expect and whether they should feel relieved or worried about this decision.

Here are some insights and advice shared by others who have been through this experience:

1. Many people feel that having an ileostomy is a small price to pay for ending the pain associated with Ulcerative Colitis or Crohn’s disease. They report not regretting their decision to have the surgery.

2. The surgery often leads to significant improvements in quality of life. People mention being free from constant pain and being able to work, study, travel, have relationships, raise children, and enjoy life again, even many years after the operation.

3. There will be some ups and downs as you adjust to life with an ileostomy. This includes learning how to care for the appliance, making dietary adjustments, and managing routine maintenance. However, these challenges are generally considered manageable.

4. On an emotional level, it is helpful to accept the stoma early on and be open about it with loved ones. Trying to hide it can lead to unnecessary emotional stress.

5. There is a supportive community available for any questions or concerns after surgery. Members encourage staying in touch and sharing updates on progress.