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41,458 members
Jul 03, 2012

Need tips on changing bag measurements - struggling with ileostomy

This topic is about dealing with the challenges of a recessed ileostomy, particularly focusing on changing stoma measurements and coping with leaks. The person sharing their experience has been living with an ileostomy for 18 months after undergoing emergency surgery. They are facing issues with leaks due to the stoma being in a deep dip, which was caused by significant weight loss. They are seeking advice on how to measure and cut the wafer correctly and are also dealing with the emotional difficulty of accepting their situation.

Here are some helpful tips and insights:

1. **Physical and Product Tips**
- Using a convex pouch can help a recessed stoma protrude, reducing leaks. Pair it with an ostomy belt for extra support.
- Regularly re-measure the stoma, as it can change shape over time. Use templates or seek help from a stoma nurse if needed.
- Consider using a soft moldable seal between the skin and wafer to fill in creases and prevent leaks.
- Try samples from different manufacturers to find the best fit for your skin, as everyone's skin chemistry is different.
- Ensure the skin is clean and dry before applying the wafer to prevent leaks.
- Showering without the pouch can help clean the stoma and make inspection easier.
- Use guards or hard covers to protect the stoma from accidental knocks.

2. **Measurement and Professional Support**
- Stomas can change over time, so periodic professional re-sizing is important to prevent leaks and skin damage.
- Stoma nurses and clinics can offer measuring, product trials, and troubleshooting support.

3. **Coping and Emotional Strategies**
- There are no silly questions; use forums and connect with others for support and practical tips.
- Naming the stoma or treating it as a part of you can help with acceptance.
- Gradual exposure, using gloves, and mirrors can reduce discomfort with touching or viewing the stoma.
- Remember that leaks are often a fitting issue and can be resolved, which can improve mood and confidence.

4. **Resources and Next Steps**
- Contact manufacturers for sample products like convex wafers and moldable rings.
- Schedule an appointment with a stoma therapy nurse for re-measuring and product trials.
- Consider trying different product combinations if current solutions are not effective.
- Re-evaluate surgical options once leaks are under control and confidence improves.

These insights aim to provide practical solutions and emotional support for managing a recessed ileostomy and the challenges that come with it.
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