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40,881 members
Jul 03, 2012

Need tips on changing bag measurements - struggling with ileostomy

Topic Explanation
The initial post is from a person who has had an ileostomy for 18 months due to complex fistulas caused by cancer treatment. They struggle with changing the measurements on the bag and dealing with the fact they have a bag.

Advice and Insights
- Use a convex barrier and consider using a clip-on belt for added security.
- Try different ostomy products and request samples from different manufacturers to find what works best for you.
- Engage with online support groups and forums to learn from others' experiences and ask questions without hesitation.
- Acceptance is key, and it may take time to come to terms with the changes.
- Seek help from a stomal therapy nurse to get the stoma measured for better fit and to address leakage issues.
- Consider using an Eakin seal between the skin and the bag to prevent leaks.
- It's normal to feel hesitant about touching or looking at the stoma, but with time, it may become more manageable.
- Seek support from family, friends, and healthcare professionals to navigate the challenges of living with an ostomy.
- Consider attending national conferences or local support groups to meet others with similar experiences and find comfort in shared understanding.
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