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Jul 25, 2009

Struggling with Sleep Due to Ostomy Bag Issues

This topic is about dealing with the challenges of managing an ileostomy bag at night, particularly when it comes to waking up multiple times to empty the bag, dealing with over-filling, and preventing leaks. The person is looking for solutions to get a better night's sleep without worrying about these issues. Here are some helpful suggestions and insights shared by others:

1. Consider using larger or longer bags:
- There are extra-length pouches available that can hold more output.
- Some people use a Coloplast 60 mm wafer with a 31-inch long drainable pouch, which is also available for shipping in the U.S. A shorter 10-inch version can be used during the day.
- Coloplast offers a "Urostomy Overnight Bag" with long flexible tubing that can be adapted for stool-ostomates. The reservoir can be placed on the floor or hooked to the mattress edge.

2. Use anti-diarrheal or thickening agents:
- Over-the-counter anti-diarrheal soft-gels can help reduce the volume and frequency of output, even after eating foods that typically cause issues.
- Gelling tablets or sachets can turn liquid output into a gel, reducing ballooning and leaks.

3. Adjust your diet and timing:
- Some people find it helpful to have a final snack later at night, allowing them to sleep in a solid block.
- Others stop eating by 7 p.m. and avoid caffeine, gassy, or fatty foods. They choose low-output snacks like applesauce, rice-based cereals, or protein-rich items, as less fiber and more protein usually result in drier, lower volume output.

4. Manage gas with "burping" techniques:
- If gas is causing the bulging, you can briefly open the outlet spout during the night to release air without getting out of bed. Practice this with the lights on to avoid accidents.
- Built-in charcoal filters may not work well with ileostomy gas, so manual burping and reviewing your diet or medications might be necessary.

5. Use mechanical support to protect the seal:
- Brands like Nu-Hope offer hernia/ostomy belts with a firm flap that covers the flange, preventing the weight of a full pouch from pulling the wafer loose while sleeping.
- Creating a homemade "dam" or padding can help tummy-sleepers avoid rolling directly onto the pouch.

6. Adapt your attitude and routine:
- Many experienced ostomates still wake up once or twice at night, but over time, the body adjusts, and these awakenings become automatic.
- It's okay to enjoy an occasional evening snack or drink. Learn your body's patterns and plan accordingly, rather than living in constant fear of a blow-out.
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