This topic is about managing a urostomy for individuals who use a wheelchair full-time. It focuses on the everyday challenges and experiences of living with a urostomy, especially for those who have had a spinal cord injury. Here are some insights and advice shared by others in similar situations:

- One person, who has been using a manual wheelchair and has had a urostomy since 2005, manages their stoma independently without major complications. They are open to sharing specific techniques and tips for self-care.

- Another individual, who has had a urostomy since 1998 and is non-ambulatory due to multiple sclerosis, has experienced several parastomal hernias. They have undergone multiple mesh repairs and a stoma resite. They suggest discussing the type of mesh and the possibility of a continent (catheterizable) urostomy with surgeons, especially since the risk of hernias is higher when you cannot stand.

- A quadriplegic member warns about the risk of recurrent urinary tract infections (UTIs) from intermittent self-catheterization and hematuria with indwelling Foley catheters. They recommend staying vigilant for signs of infection and discussing alternative diversion methods with urologists.

- For those seeking community support, members encourage private messaging or participating in picture-comment threads for sharing detailed techniques. They also inquire about the existence of a dedicated chat room for wheelchair users with ostomies.

The originator of the discussion has shared some personal experiences and concerns:

- They have not yet experienced a parastomal hernia but are noticing some abdominal issues and plan to discuss this at an upcoming appointment.

- After struggling to find a suitable pouch, they have finally found one that provides confidence.

- A major concern is the visibility of the bag, as they already feel conspicuous in a wheelchair and worry about drawing additional attention.

- Flying alone presents challenges, such as not being able to access the airplane toilet, limiting fluid intake beforehand, and worrying about the pouch detaching mid-flight.

- They benefit from access to specialist continence nurses at a spinal-injury unit but are still looking for tips and reassurance from peers.