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Nov 25, 2012

Living with an Ostomy Bag Due to Scleroderma

Living with an ostomy bag due to scleroderma can be a challenging experience, and it's natural to have questions about the possibility of reversing the procedure. Scleroderma is a condition where excess collagen leads to scar tissue formation, affecting the gastrointestinal tract and disrupting normal digestion. Here are some insights and advice shared by others who have faced similar situations:

1. The originator of the discussion has lost a significant portion of their colon and currently lives with an ostomy. They are curious if others with scleroderma have had an ileostomy or colostomy and how the disease's progression might impact the chance of reversing the ostomy.

2. They explain that scleroderma causes scar tissue throughout the gastrointestinal tract, affecting everything from the esophagus to the anus, which can complicate normal digestive processes.

3. The originator is particularly interested in hearing about any successful cases of ostomy reversal in people with scleroderma.

4. One person shared that scleroderma is an autoimmune disorder that affects connective tissue, including the skin and organs. They mentioned they haven't come across cases where scleroderma directly required an ostomy, nor are they aware of any outcomes related to reversing the procedure.
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