Living with an Ostomy Bag Due to Scleroderma

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moonshine

Nov 25, 2012 5:42 am

Does any one have a ostomy (colostomy or illeostomy) bag due to scleroderma?

I wonder how the progression of the illness affects the chance of reversal.

any thoughts??

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Xerxes

Nov 25, 2012 11:40 pm

Is there a connection? I believe that scleroderma is an autoimmune destruction of the connective tissue and it does affect the skin and other organ systems. I have not heard of it leading to an ostomy, however.

X_

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moonshine

Nov 26, 2012 11:56 pm

Yup - there is a connection - the connective tissues produce too much collegan...hence producing scar tissue. this interferes with the peristalic waves needed for proper movement in the gi track. i have/had problems from esophagus to anus.................lost about 4 out of 5 feet of colon....small intestine not connected to small bit of colon (yet).....i was just hoping someone had been reconnected that had scleroderma.

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