Topic Explanation
The forum topic is about a person who had their colon, rectum, and anus removed due to a diagnosis of FAP (familial adenomatous polyposis) and is now facing issues with hundreds of polyps in their duodenum. They are seeking advice and information from others who have experienced similar problems with FAP and duodenal polyps.

Replies and Insights
- A link to technical information about FAP and duodenal polyps is shared.
- A user shares their experience with FAP and the positive impact of getting an ostomy.
- Another user shares their daughter's misdiagnosis and complications with a J-pouch.
- A user discusses their delayed polyp development and the decision-making process for surgery.
- A user shares their experience with a Whipple and total ileostomy, offering support and advice on surgeries and genetic testing.
- The importance of seeking multiple opinions from surgeons and places for treatment is emphasized.
- The impact of FAP on the digestive system and the need for regular scans is highlighted.
- Quality of life is emphasized over quantity, especially when dealing with cancer.
- The importance of informing family members about the genetic risk of FAP is stressed.