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Jan 13, 2014

Ileostomy reversal - Seeking advice on removing the bag after multiple bowel resections

This topic is about someone who had an ileostomy after undergoing treatment for cervical cancer and is now considering having it reversed. They are seeking advice and experiences from others who have been through similar situations. Here are some insights and advice shared by others:

1. Before considering a reversal, surgeons typically check:
- That the anal sphincter is functioning well.
- That you won't need to make very frequent or urgent trips to the bathroom after the reconnection.

2. Long-term effects of radiation can make reversal challenging or sometimes not possible:
- Issues like chronic bleeding or anemia that might require iron infusions or blood transfusions.
- Permanent fragility or perforations in the bowel, which could lead to needing multiple stomas.
- Persistent fatigue.

3. Radiation can also affect the bladder or small intestine:
- Recurrent urinary infections and the need for bladder procedures are common.
- Radiation enteritis might cause severe diarrhea, and some doctors may prescribe low-dose antidepressants like amitriptyline or imipramine to help slow down gut movement.

4. Fistulas and parastomal hernias can delay or prevent reversal plans, often requiring separate surgeries first.

5. Many people have found it helpful to seek opinions from several major hospitals or specialized centers, especially when local medical teams struggle with complex radiation-related issues. Getting a second or third opinion is often recommended.

6. Even if the reconnection surgery is technically successful, issues like late-forming fistulas can occur, so long-term follow-up care is important.

7. Quality-of-life concerns are significant, including ongoing fatigue, limitations on sexual activity, and the psychological impact of prolonged complications. Peer support and counseling are recommended alongside medical care.
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