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Jan 23, 2014

Dealing with Ileo - Juggling Food Choices

Balancing your diet and maintaining consistent output with an ileostomy can be quite a challenge. It often involves finding the right mix of foods that either thicken or thin the output. For instance, foods like potatoes and pasta can thicken the output, which might lead to issues like pancaking and blow-outs. On the other hand, drinking prune juice and grape juice can make the output too watery. If you're dealing with this constant balancing act, here are some helpful tips and insights:

1. Diet timing and portion control:
- Plan your meals around your daily activities. For example, if you have an afternoon meeting, try having a balanced, moderate-sized lunch around 11 a.m.
- It's best to avoid eating late in the evening.

2. Chewing and physical movement:
- Make sure to chew your food thoroughly, as not doing so can lead to blockages or pancaking.
- Stay active after meals. Movement and gravity can help with digestion and the flow of output.

3. Fiber management:
- Keep an eye on your fiber intake. Many people with an ileostomy find that a lower-fiber or "low-residue" diet helps prevent thick output and obstructions.

4. Foods and drinks that thin output:
- Drinks like beer, hot tea, chocolate, apple cider, prune juice, and grape juice can help produce a looser, more manageable output. If you're concerned about weight gain, use chocolate sparingly.
- If foods like potatoes and pasta consistently cause pancaking, try consuming them in smaller amounts.

5. Pouching system adjustments:
- Switching from a flat to a convex pouch with an elastic waistband can significantly reduce pancaking and extend the wear time from about 1 day to 4–6 days.
- Avoid tight belts. Instead, consider wearing trousers one size larger with suspenders to relieve pressure from the top of the pouch and prevent blow-outs.

6. Long-term expectations:
- It may take months or even years to fine-tune your diet and appliances, but many people report gradual improvements over time.
- Be prepared for occasional obstructions, especially if you have scar tissue or adhesions. Continual dietary experimentation and vigilance are key.
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