This topic is about managing peristomal hernias, which can develop after living with an ostomy for many years. A peristomal hernia occurs when tissue pushes through a weak spot around the stoma, creating a bulge. Here are some insights and advice shared by others who have faced this issue:
1. Prevalence, Risks, and General Guidance
- Peristomal hernias are quite common among those with ostomies. Some surgeons suggest not intervening unless the hernia causes pain, blocks the bowel, affects the appliance, or limits daily activities.
- Repairing these hernias can be challenging, with a high chance of failure. Moving the stoma can create another potential hernia site.
- Simple actions like sneezing or gaining significant weight can trigger or worsen a hernia.
2. Surgical Options and Outcomes
- Traditional open repair with stoma relocation has about a 50% failure rate within five years.
- The "sling" technique, which uses a mesh, has a lower failure rate of less than 20% within five years.
- Laparoscopic or arthroscopic mesh repair can reduce scar tissue and usually requires just an overnight hospital stay, but hernias can still recur.
- Any surgical repair can weaken the abdominal wall, often leading to lifelong restrictions on lifting heavy objects.
3. When Not to Operate
- Surgery is often advised against unless the hernia causes significant issues like bowel obstruction or severe discomfort.
- One person shared an experience of living with a hernia for seven years before it suddenly obstructed, requiring emergency surgery, highlighting the importance of monitoring even symptomless hernias.
- Those with multiple previous abdominal surgeries might not be suitable candidates for further operations.
4. Support Garments and Everyday Workarounds
- Custom-made hernia belts, designed to fit precisely around the stoma, can help slow hernia progression and improve comfort.
- Commercial belts and back braces with stoma openings are available, but a good fit is essential.
- Heavy-duty suspenders or braces can be useful for those who cannot wear a belt due to the hernia's position.
- Belts should provide firm, targeted pressure on the lower abdomen and be adjustable to accommodate changes in body shape.
5. Lifestyle Modifications
- After hernia repair, avoiding lifting objects over 50 pounds is often recommended. It's wise to plan for lifestyle changes and use scales to check the weight of items if unsure.
- Some people find that regular exercise, like weightlifting or gardening, does not worsen their hernia, but caution is advised as one wrong move can make it larger.
- Keeping a stable or lower body weight can reduce the strain on the stoma site.
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