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Jun 29, 2014

Advice Needed - Reversal Surgery Concerns - Scared to Have It Done, Need Questions for Surgeon

This topic is about preparing for a colostomy or ileostomy reversal, which is a procedure to reconnect the bowel after having a temporary stoma. The person in question is feeling anxious about the surgery and is looking for advice on how to approach the decision-making process, what questions to ask the surgeon, and what to expect during recovery.

Here are some helpful insights and advice:

1. Prepare for the consultation:
- Write down all your questions beforehand. Consider asking about the recovery timeline, expected bowel function, necessary tests like a contrast study to confirm readiness, and any pre-op preparations such as pelvic-floor exercises.
- Make sure you feel comfortable and confident with your surgeon. If you have any doubts, don't hesitate to seek a second opinion or ask for referrals.

2. Physical preparation and early recovery:
- Pelvic-floor exercises can be beneficial for regaining continence.
- Remember that online forums often highlight negative experiences, but many people have smooth recoveries and move on with their lives.
- The anticipation of surgery can be more daunting than the procedure itself. Be mentally prepared for a recovery period that can vary greatly from person to person, lasting weeks to months.

3. Hospital stay and immediate post-op care:
- Understand that this is a major operation, and rushing recovery is not advisable. Accept any help offered.
- Bring quality adult diapers, as hospital supplies may not be sufficient, and expect some accidents. Nurses are accustomed to this and will assist with cleanup.
- Hospital stays typically range from 5 to 7 days, with the first few days being the most challenging. Removing scar tissue can extend the operation time.

4. At-home recovery:
- Follow dietary instructions carefully and introduce new foods gradually.
- Your activity levels will improve over time. You might start walking within days, return to near-normal activities in about 8 weeks, and some people even run a half-marathon 8 months later, though results vary.
- Keep a positive attitude and give yourself time to heal. Many people regain a normal lifestyle after recovery.

5. Support and reading material:
- Consider reading "Is that a New Pouch You’ve Got? (Or Do You Always Walk Like That?)" by Dick O’Grady, available from the Ileostomy Internal Pouch Support Group, for additional support and information.
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