Experiencing an ileostomy reversal can be a significant event, and it's natural to want to hear about others' journeys through it. Here are some shared experiences and advice from people who have been through or know someone who has been through ileostomy reversal surgery:

- One person shared that their niece, who has familial adenomatous polyposis (FAP), underwent an ileostomy reversal and is doing "perfectly fine." They believe her success is due to:
- Being proactive about her diet.
- Regularly using probiotics.

- Another individual, who now has a permanent ileostomy after a failed J-pouch, emphasizes the importance of sharing more background details. This includes whether the colon is still present and the original reason for the ileostomy, as it helps others provide more tailored advice. They also mention:
- Outcomes can vary significantly based on the underlying condition, such as ulcerative colitis versus FAP, and whether the entire colon was removed.
- It's important to be aware of potential issues like frequent bowel movements, cramping, urgency, dehydration, and the possibility of needing revisions. Understanding these can help set realistic expectations before deciding on reversal surgery.