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May 20, 2016

Regretting Colostomy Reversal - Need Support/Advice

This topic is about an 18-year-old who is experiencing regret after having a colostomy reversal. Initially, the colostomy was created due to complications from a surgery for anal prolapse and hernia. After the reversal, the individual is facing severe digestive issues and feels misled by the initial promise of full recovery. Here are some pieces of advice and insights that might help:

1. Consider the option of having the ostomy recreated. Many people find that they can return to a normal life, including work and travel, with a permanent colostomy or ileostomy once they are ready.

2. Seek a second or even third opinion from a different colorectal surgeon. It is best to consult with specialists at a major teaching or university hospital, or those known for correcting surgical errors. Some have recommended a highly regarded surgeon near Uxbridge, UK.

3. Be cautious about proceeding with the proposed sacral-nerve electrical procedure. Ensure that another expert confirms it is appropriate before undergoing any additional experimental surgeries.

4. If you have lost confidence in your current medical team, you have the right to request a referral to any NHS hospital, provided you can travel. Insist on being transferred if necessary.

5. Consider consulting a medical-negligence solicitor as soon as possible, as there are strict time limits (three years in the UK) for such cases. Compensation could help fund private care with top surgeons and provide recompense for your suffering.

6. Bring an advocate, such as a family member or friend, to your medical appointments. This person can help ensure that your concerns are heard and documented, as surgeons may focus more on technical issues and overlook the emotional impact.

7. Seek psychological or counseling support through your GP or hospital. Depression is common after traumatic medical experiences and should be addressed alongside physical health issues.

8. Remember that adjusting to a permanent ostomy can be challenging at first, but most patients adapt quickly. Managing an ostomy appliance can become as routine as getting dressed. Stay hopeful and take things one day at a time.
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