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Dec 15, 2009

Managing Diet with an Ostomy and Fistula Complications

This topic is about managing diet, hydration, and output consistency for someone who recently had a double-barrel ostomy due to a rectal tear from a hysterectomy. They are also dealing with a bladder-to-vagina fistula, which is causing constant urine leakage despite having a Foley catheter. The person is experiencing difficulty in balancing fluids, leading to varying ostomy output, and has lost significant weight. They are feeling overwhelmed and are seeking advice on whether choosing foods is just a matter of guesswork.

Here are some helpful tips and insights:

1. Keep a detailed journal of your food and output. Note everything you eat, your fluid intake, the consistency of your stoma output, any gas, pain, and unusual symptoms. This can be very helpful for your medical appointments.

2. Understand that it may take 1–2 months or even longer for your output to stabilize. Early fluctuations are normal, so try to be patient with yourself.

3. Introduce new foods slowly and in small amounts. If a food causes issues, avoid it next time. This trial-and-error process is a normal part of adjusting.

4. Focus on easily digested, low-residue foods in the beginning. Foods like bananas, pasta, oatmeal, cream of wheat, pudding, squash, and cooked carrots can help thicken your output.

5. Be cautious with foods and drinks that can liquefy your output, such as carbonated sodas and large amounts of fluid consumed quickly.

6. To stay hydrated without overwhelming your pouch, sip fluids steadily rather than gulping them down.

7. Consider using electrolyte solutions like Gatorade to replace salts and prevent dehydration.

8. Be mindful of gas-producing foods like garlic, raw vegetables, and cabbage. Try them in small amounts until you know how your body reacts.

9. It's okay to occasionally indulge in foods that might cause issues if you're prepared for the extra gas or bathroom trips.

10. Keep track of any abdominal pain. Sudden or severe pain could indicate issues like kinks or twists in the bowel.

11. Remember that most people eventually become comfortable and can enjoy a wide variety of foods, including spicy dishes, once the initial healing phase is over. The toughest part is likely behind you.
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