This topic is about a woman who has been living with a urostomy and an ileostomy since birth due to a rare birth defect. She is seeking to connect with other women who have similar experiences to share medical information and discuss future goals. Although she is comfortable talking about her condition in person, she finds it challenging to write about it online. Despite purchasing a membership on a site to find support, she has not yet found it helpful.

Here are some suggestions and insights that might help:

1. Explore the "Contents" section under "Collections" on the site. It has a wealth of past discussions that might be beneficial.

2. Remember that community members are there for support. You can post questions, share your thoughts, or even blog if you feel like venting or need some encouragement.

3. Consider engaging in private conversations with other members. Even if they are not women, like the male member with spina bifida who offered to chat, peer-to-peer conversations can still provide valuable support and insights.