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May 24, 2017

Alternatives to Bags for Permanent Ileostomy

This topic is about exploring alternatives to traditional ostomy bags for those with a permanent ileostomy, especially for activities like going to the beach. The idea is to find ways to feel more comfortable and free without the usual pouch. Here are some insights and advice on this topic:

1. Due to the continuous output from an ileostomy, going completely "bag-less" isn't practical. Some form of protection is always necessary.

2. Stoma caps are the smallest option available. They are short, flat covers that provide temporary security, making them suitable for activities like swimming.

3. Plugs:
- Coloplast offers plugs used by some colostomates after irrigation. These come with an adhesive shield and built-in deodorizer.
- However, because ileostomy output is liquid and continuous, these plugs might not last long. It's a good idea to try free samples from manufacturers before buying.
- If a plug slips inward, retrieving it can be tricky. Some have used improvised tools, but this requires extreme caution.

4. The idea of using a tampon or Tampax is generally discouraged. Although it resembles a plug and has a retrieval string, it poses risks like toxic shock syndrome.

5. Using a condom as a cover might work if you can create a secure seal around the flange or plate. However, plain plastic tends to slip due to stoma mucus.

6. A practical approach is to experiment with fasting or identifying personal low-output times. You can then plan beach activities during these times while still using minimal protective gear, like a stoma cap.
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