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41,420 members
Aug 18, 2017

Chicago Area Newbie Sharing Ileostomy Experience

This topic is about a person from Chicago who recently had an ileostomy due to colon cancer. She is reaching out to connect with others who have similar experiences and to share information.

Here are some details and advice shared by others:

1. She underwent a complete hysterectomy because a fibroid tumor contained colon cancer cells, and had two-thirds of her colon removed. Now, she has two stomas, known as an ileocolostomy.

2. She was diagnosed with Stage 4 metastatic colon cancer affecting both the left and right sides.

3. She is dealing with two parastomal hernias and a large stoma prolapse, which make managing her pouch and daily care quite challenging.

4. She has decided to delay chemotherapy and is exploring natural supplements instead. She was informed that the typical life expectancy without chemotherapy is about six months. Her surgery was last May, so she is currently 6-12 months post-operation.

5. She is looking for tips and shared experiences on managing a large prolapse and parastomal hernias.

Advice and insights from others include:

- Many members assure her that this forum is a welcoming place to find practical advice and emotional support. They encourage her to explore existing discussions, ask specific questions, and join the General Chat room.

- Members highlight the importance of maintaining a positive attitude, which can help many ostomates cope better with challenges and adjust to life with a stoma.
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