This topic is about someone who is dealing with the challenges of waiting for surgery to remove a bleeding rectal stump. This situation arose after they had a permanent colostomy due to severe Crohn’s disease. They have been on an urgent waiting list since December 2015, and their surgery was unexpectedly canceled at the last minute. A new date has been set for September 6, 2017, but the delay and ongoing bleeding are causing them anxiety and distress.

Here are some pieces of advice and insights shared by others:

1. Many people expressed understanding and noted that last-minute cancellations in the NHS are unfortunately common. They emphasized the importance of emotional support and patience during this time.

2. Individuals who have experienced rectal stump bleeding, whether due to colorectal cancer or ulcerative colitis, shared that having the stump removed eventually stopped the bleeding and ended disease activity in that area.

3. A long-term ileostomate with over 50 years of experience offered some advice:
- Advocating for rectal stump removal was beneficial after enduring years of bleeding and pain.
- Once the rectum is removed, that area is no longer at risk, but Crohn’s disease can still flare up in other parts of the gastrointestinal tract. Ongoing monitoring and medical management are important.
- Maintaining hope and perseverance during long waits is crucial, as the surgery can significantly improve quality of life.

4. The community encouraged staying connected with support networks, keeping the forum updated, and mentally preparing for the new surgery date.