Living with a urostomy since childhood can be a unique journey, but it doesn't have to hold you back from enjoying life to the fullest. One person who has had a urostomy since infancy shares their experience, noting that it hasn't stopped them from doing most things they wanted to do. Now retired, they reflect positively on their life with a urostomy.

Here are some pieces of advice and insights from others who have shared similar experiences:

1. People in the community warmly welcome those who are new to forums or support groups, appreciating the positive attitude that many bring to the conversation.

2. Engaging in friendly conversations and offering mutual support can be incredibly helpful. Sharing humor and discussing the everyday "maneuvering" that comes with living with an ostomy can make the experience more relatable and less daunting.