The topic is about preparing for a total colectomy, which is a surgery to remove the colon, often necessary for those with severe ulcerative colitis. The person scheduled for this surgery is curious about what life will be like with an ostomy pouch, including how often it needs to be emptied or changed, whether it is painful, and what the first month of recovery is typically like. Here are some helpful insights and advice:
- Emptying Frequency
- How often you need to empty the pouch depends on your eating and drinking habits. Most people find themselves emptying it 5 to 8 times a day.
- It's a good idea to empty the pouch before activities like driving, bending, squatting, or sleeping, even if it's not a third full. Many people avoid eating after 8 PM to reduce nighttime output.
- Follow the guideline of emptying when the pouch is about a third full, as taught by stoma nurses. A peribottle with warm water can help rinse the pouch.
- Changing the Pouch/Wafer
- The typical wear-time for a pouch is 3 to 5 days for a 1-piece system and 5 to 7 or more days for the wafer of a 2-piece system.
- Factors like activity level, heat, perspiration, swimming, and body chemistry can affect how long you can wear the pouch. A more sedentary lifestyle might allow for a full week of wear.
- It's best to change the pouch first thing in the morning or several hours after eating when the bowel is quieter.
- Sitting on the bed rather than standing can give you more control and help form a better seal when changing the pouch.
- Keep waterproof framing tape handy to reinforce the edges of the wafer.
- Products, Supplies & Samples
- Consider using waterproof tapes like HyTape or Pink Tape.
- Senna-based laxatives can help relieve minor blockages, and some find that wine can help too.
- Request free starter or sample kits from various ostomy manufacturers to find the best system and accessories for you.
- For peer support and product tips, visit websites like meetanostomate.com.
- Pain & Surgical Recovery
- The pouch itself doesn't cause pain once the surgical incisions heal. Initial discomfort is due to the surgery and usually subsides in 1 to 2 weeks.
- Hospitals often provide a PCA pump for pain management, but many patients wean off it quickly.
- Trapped abdominal gas can cause a dull ache, which lessens over the first week.
- You can expect to start walking by the second day after surgery, and discharge from the hospital may occur 3 to 7 days post-op, depending on various factors.
- Driving can generally resume 1 to 2 weeks after surgery, but it's advised to place the seatbelt across your thighs, not over the stoma.
- Diet in the First Month
- Begin with clear liquids, then move to soft and low-fiber foods, making sure to chew thoroughly to avoid blockages.
- Reintroduce raw vegetables, fruit skins, nuts, and other fibrous foods slowly.
- Common easy-to-digest foods include pasta, potatoes, chicken, and seafood.
- After an ileostomy, the average gastric transit time is about 5 hours, with liquids like orange juice or beer emptying in about 2 hours.
- Activity & Lifestyle
- Avoid heavy lifting initially to prevent hernias and gradually build core strength.
- Many people return to work 4 to 8 weeks after surgery, though they may not yet be at full energy levels.
- It's normal to experience some mild depression or altered body image, but improvements in quality of life, such as no more urgent bathroom trips or colitis pain, often offset this for most people.
- Education & Ongoing Support
- Utilize hospital WOC (ostomy) nurses to learn about pouching techniques, skin care, and product options. Get their direct phone number for any questions after discharge.
- Watch YouTube demonstrations for changing and draining methods.
- Join peer forums like MeetAnOstomate for ongoing troubleshooting and moral support.
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