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Jan 08, 2010

My First Ostomy Bag Mishap and Lessons Learned

This topic is about someone sharing their first experience with an ostomy bag mishap, specifically a gas "burp" that turned into an unexpected leak. They describe the incident and express concerns about handling such situations when away from home. They also seek advice and invite others to share their own stories. Here are some helpful insights and advice shared by others:

1. Leaks are a normal part of adjusting to life with an ostomy. With time and experience, you'll become more confident. Stay positive and keep going.

2. Be aware of early warning signs like itching or a damp feeling around the flange. If you notice these while in bed, consider sleeping on a towel to protect your sheets and duvet.

3. To manage night-time gas:
- Avoid carbonated drinks or let them go flat after 5 p.m.
- Be cautious with sugar-free sweets and pork, as they can cause significant gas build-up.
- Some people use Convatec Extended-Wear Large-Capacity pouches for extra volume at night, but be mindful of potential seepage issues.

4. Always carry emergency supplies with you, such as a spare pouch/flange, baby wipes, paper towels, and plastic bags. Keep extras in your car or handbag.

5. For cleanup, baby wipes and bottled water are effective. You can also use paper towels or sanitary pads to temporarily secure a loosening wafer until you can get home.

6. If you find yourself in a public restroom and someone knocks on the door, stay calm and focus on reattaching your pouch correctly to prevent further issues. Tying a coat or jacket around your waist can help conceal any accidents as you leave.

7. Be cautious with Velcro-closure drains, as they can be accidentally opened by sanitary pads with adhesive wings. Ensure the adhesive is clear of the Velcro before standing up.

8. Before your final empty at night, try walking or doing a little "hula" dance to move the output into the pouch for a thorough emptying.

9. Keep at least two complete sets of supplies within reach during a change, in case the first attempt doesn't go as planned.

10. Giving your stoma or pouch a fun name, like "Front Bum," "Stomy," "Squirter," or "Little Guy," can help maintain a sense of humor and make conversations with family easier.

11. If you experience issues with ring seals or bag-to-ring joints separating, report the lot numbers to the manufacturer. They often provide replacement supplies for free.
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