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Jul 08, 2018

Ileostomy Reversal - Pain & Recovery - What to Expect?

The topic at hand is about the experiences and expectations surrounding an ileostomy reversal. This is a procedure where a temporary ileostomy is closed, and the bowel is reconnected. The person sharing their story had complications after surgery, leading to an ileostomy, and is now planning for a reversal. They are concerned about potential pain, recovery time, and the possibility of becoming house-bound after the procedure. They are seeking advice and insights from others who have undergone similar experiences.

Here are some helpful points and advice shared by others:

1. Before the surgery, ask your surgeon detailed questions about:
- How much of the colon was removed.
- The condition of your anal sphincter muscles.
- The surgeon’s personal success rates and complication statistics.
- Any recommended reading materials.

2. The length of the remaining colon is important:
- Less colon can mean more frequent stools.
- Strong sphincter control helps prevent incontinence.

3. Many people experience smooth recoveries:
- One person had 18 inches of colon removed and reported no pain after reconnection, with a normal diet and only needing a stool softener and mild laxative.
- Another person, after a 3-month ileostomy, passed stool two days post-op, went home on day seven, and now has normal frequency without urgency or accidents.

4. Be prepared for possible but manageable issues:
- High frequency of bowel movements can occur initially but usually decreases over time.
- Imodium (loperamide) can help reduce frequency, with morning doses often being effective.
- Constipation might happen; mild laxatives or stool softeners can help, but always consult your surgeon.
- Abdominal weakness and hernias are common after multiple surgeries, and some may need hernia repair later.
- Occasional abdominal pain or "explosive" diarrhea may persist but is typically episodic.

5. Diet guidance:
- Follow a staged food re-introduction plan, starting with low-residue, low-fiber foods.
- Introduce new foods one at a time and eliminate any that cause symptoms.
- Some people avoid all fiber initially and reintroduce it gradually.

6. General recovery tips:
- Stay in close contact with your medical team and insist on getting answers and support.
- A positive attitude and a skilled surgeon are crucial, as most reversals are successful.
- Be prepared for some discomfort, but remember that many patients regain normal energy and activity levels.

7. Mentioned products and resources:
- Imodium (loperamide) tablets for managing bowel movement frequency.
- Bowelprepguide.com for dietary progression charts.

These insights aim to provide reassurance and practical advice for those considering or preparing for an ileostomy reversal.
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