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Mar 19, 2019

Need Stoma Care Advice & Info - Seeking Help for Healing, Self-care, and Hernia Concerns

This topic is about someone seeking advice on how to care for their ostomy after surgery, how to get in touch with a stoma nurse, and concerns about possibly developing a hernia. They are also looking for reliable sources of information.

Here are some helpful insights and advice:

1. Hospital-based stoma care:
- Most hospitals have ostomy or wound-ostomy-continence (WOCN) nurses who meet with patients before they leave the hospital. They teach how to change and empty the pouch, check on healing, and set up follow-up visits.
- If you didn't meet with a stoma nurse, call the surgery department or your surgeon’s office to request an appointment or referral.

2. Home-health support:
- Many patients receive home visits from nurses after leaving the hospital until they can manage their care on their own.
- Your surgeon or primary doctor can provide a referral for home-health or outpatient ostomy-nurse services.

3. Supply companies with education programs:
- Some supply companies, like those contracted by Kaiser Permanente, offer education programs set up by stoma nurses during your hospital stay.
- Byram Healthcare provides detailed telephone instruction and product guidance.

4. Learning resources:
- You can find helpful ostomy care demonstrations on YouTube, which can reinforce what nurses teach.
- Local hospitals or clinics may have ostomy support groups where you can get tips and emotional support from peers. You might even consider starting a group.

5. Timing of education:
- For planned surgeries, it’s common to meet with an ET/WOCN nurse a week or more before the surgery. Education continues in the hospital and after you go home.

6. Skill-building reassurance:
- Most patients quickly become proficient in managing their care, adapting routines to fit their individual needs, and eventually feel comfortable advising newcomers.

7. Emotional encouragement:
- Many long-term ostomates report living full, active lives and are willing to answer further questions.

(Note: There was no specific advice provided about hernias in the responses.)
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