Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,422 members
Apr 03, 2019

Need advice on accepting my ostomy - struggling to cope!

This topic is about someone who has been living with a colostomy for three years due to Crohn’s disease and is struggling to accept it, especially with the continuous liquid output. Despite trying various methods to manage the situation, they are still facing challenges and are seeking advice on what else they can do. Here are some insights and suggestions shared by others who have been in similar situations:

1. Mind-set and Acceptance
- Many people initially feel despair but find acceptance by viewing the stoma as life-saving and enabling them to engage in normal activities like work, travel, and socializing. Some find it helpful to give their stoma a nickname to make it more personal and tolerable.
- Appreciating a supportive spouse can help ease feelings of resentment, as chronic illness can strain relationships.

2. Diet to Thicken or Slow Output
- Foods like potatoes, bananas, marshmallows, plain chicken, cold roast beef, and jacket potatoes are often recommended to help thicken output.
- Identifying and reducing FODMAP intolerances, such as wheat products, certain fruits, soft cheeses, and most dairy, can significantly reduce gas and liquid output. Keeping a food and output diary can help identify personal triggers.

3. Medication and Professional Help
- Consult with a gastroenterologist about additional medications that can help manage output, such as anti-motility or bulking agents.
- Consider getting a referral to a gut-function specialist for tests that can provide more insight into gastric emptying and transit times.

4. Caution on Reversal with Crohn’s/IBD
- Reconnecting the bowel can lead to a recurrence of symptoms like bleeding and pain. It’s important to thoroughly discuss the risks with an experienced IBD colorectal surgeon to determine the best course of action.

5. Appliance Management
- Using modern high-output pouches or two-piece systems designed for liquid stool can help manage leaks. Consider using convex wafers or extended-wear barriers to improve the seal.

6. Emotional and Peer Support
- Feeling alone is common, but participating in forums, local ostomy chapters, or online chats can help reduce isolation. Remember, adjusting to life with a stoma is a personal journey and may take time.

7. Alternative/Complementary Approaches
- Some people explore naturopathic support, such as IV vitamin C, mistletoe, and artesunate, as part of their coping strategy, though these are not evidence-based for everyone.

8. Activity and Lifting
- Gradually resume activities but avoid heavy lifting to prevent complications like a parastomal hernia. Listen to your body and progress at your own pace.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,422 members.

“I found real people, real humor, and answers I couldn’t get anywhere else.”

“The support here impressed my husband’s medical team - they plan to recommend it.”

“This community saved me when I thought I was a freak. Now I’m thriving.”

“Thank god for this site - I finally knew what to ask my surgeon.”

Join Free

Popular Topics

Happy Veteran Day
Finding My Rhythm
OH, MY!
Attn: Newbies……Ahhhh - A Naked Shower
Barbie Butt Surgery; Are My Recovery Expectations Foolish?!?
Kerry Update
Barrier Wipes or Spray: Which Do You Prefer?
Newbie
Important information regarding proposed changes to how Medicare/Medicaid will treat ostomy supplies.
Pooh Sticks and Bowel Cancer Tests: A Lighthearted Comparison

New Topics

Retracted Small Stoma and Colonoscopy Challenges
B. Withers - Be kind 52
Right or Left
Vitamin K2 Production and Testing Without a Colon
Keeping distance
Ostomy Bags Not Sticking Properly
Autism
Dating
B. Withers-B.Kind 124-6
Losing Weight for Colostomy Reversal: Seeking Advice
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑