Hi Guys,

New here. I've had one question on my mind that I've been unable to find any answers on. In November I was finally relieved from Ulcerative Colitis after failing a few medications and throwing in the towel. I went into surgery explicitly wanting the bag and the bag I did come out with (loop ileostomy with a constructed j pouch, step 2). My surgeon is already pushing me to finish up ...

Hi all, I know IRA surgery isn't performed as much as J-pouch, but I still have 10 inches left of sigmoid colon and a current end ileostomy. Last week, I had scopes and was told everything looked great and if I wanted to pursue surgery I should. I saw Dr. Remzi in NYC last year and discussed a J-pouch, but he never mentioned an IRA which suggests to me that he preferred a J-pouch since that's ...

WHEN YOU SUFFER THE EXHAUSTING pain and misery that causes you to end up with an ostomy, it is not unnatural to find yourself questioning your place in the world. We’ve all been through that to one extent or another. Here’s how I dealt with it. I simply decided that I was not going to be intimidated by reality anymore. There were some small aspects of my life over which I had control. ...

Hi everyone,

I'm almost four months post-ileostomy surgery, and I'm looking to start rebuilding my core strength. I haven't been able to exercise for years, so I'm starting from scratch and want to be really careful.

One of my biggest concerns is overdoing it and increasing my risk of a hernia. I know core strength is important, but I'm not sure what exercises are safe to begin with. ...

A year, almost to the day, I started a journey I did not know I would be on. On May 22nd, 2024, my husband took me to the emergency department as something did not feel right in my abdomen. I had been dealing with a kidney stone since May 19th, but this felt the same. It felt like what I described to my husband: like a puff of air had been released in my abdomen.
When the CT scan results came ...

Hi all! I'm 27 and looking for other young ostomates. I'm in the United States, Georgia to be specific. I'm looking for both local and virtual connections with others in the young adult stage. I have a great local support group, but everyone is over 50 and relatively inactive. When I go through members here local to me, I don't find anyone in my age group. Does anyone have tips on meeting youn ...

So right after I posted my one-year check-in, I ended up in the ER with an obstruction that night. I was in excruciating pain and vomiting. Again, I escaped the NG tube, thank goodness, but the treating physician said that my CT scan showed that the obstruction was in the small intestine and most likely due to scar tissue. The location of the obstruction was where the small intestine got sucke ...

Hi everyone! I first posted her back in March of 2024 and it's been a wild ride.

Last November I had a completely clear PET scan and was able to reverse my ileostomy surgery. I had no idea how difficult it was going to be to wake my colon back up and have all organs down there play nice with each other. I was in the hospital for almost 3 weeks just waiting to poop. It finally happened and ...

Hi all, just got my 2nd/3rd opinion today and really liked this doc a lot. She said if she were younger (like the 1st doc I saw) she too would say let's take this down tomorrow, but she is 20 years older and has been doing this awhile, so she is extremely cautious with cancer patients. She even had one that had no evidence of disease, did the reversal, and cancer showed up. Reversals are prett ...

Just saw the PA who assisted the surgeon with my revision and discovered the reason that I have both an innie and why they didn't repair the parastomal hernia - they could not find the fascia that they would fasten it to! Guess my fascia was really torn up during the emergency surgery in 2023 that started my saga and has basically gone into hiding Anyway, I am healing, but she wants to see me ...

During my medical adventure in 2022, I was bedridden for nearly 3 months. Hardly ate anything, lost 66 pounds.
Surgery was successful. Got the colostomy. Went home very weak. Three weeks post-op, I regained my ability to walk and returned to work. Gained back 30 pounds and have maintained a healthy weight. A year and a half later, I retired.
I have now discovered I'm in poor physical shape. My ...