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Noisy Ileo stoma when “working”

Posted by MOST52, on Fri Aug 23, 2019 10:19 pm

I am wondering if I need stoma dilation.  Is this a DIY or do I need to see an ET?  Thank you for any advice

Reply by warrior, on Fri Aug 23, 2019 10:27 pm

what do u hope to accomplish by dialation? Making the opening wider , larger, wont quiet the stoma. U need to watch the foods u eat. Its gas, or burping, or farting. Very natural thing going on, unless its sounds like Billy goat.😊

Reply by Nobagjerz, on Fri Aug 23, 2019 11:41 pm

hi from Baltimore.i don’t drink soda or beer 🍺. I drink V8juce when I eat salad 🥗 I get gas ⛽️.hope this helps the more you eat the more you will farts 💨 

Reply by Bill, on Sat Aug 24, 2019 2:45 am

Hello MOST52.  I'm with Warrior in questioning the reasons why you feel you need stoma dilation. Also, it is probably wise to discuss this with someone who knows about stoma aftercare  which may not be the surgeon but a stoma nurse. However, I am possibly not the best person to be giving this advice as I often  opt for the 'common sense'-DIY approach to managing problems with my stoma. 

I have just re-read the title of this post and realise that you have an ileostomy and problems with gas. Bearing this in mind I have edited out my first reply as it probably would not be of any help in your case. 

I have often thought that if I had an ileostomy (which I don't!) and I was embarrassed by noisy wind, then I would try using stoma plugs for those occasions when it was likely to cause embarrassment. The stoma plugs are quite good at allowing gas to escape without the noise because they are porous yet are firm enough to stop the loose colon walls from 'flapping' ( which is what makes the noise).  They would probably not be much good at preventing liquid output, so I would be using them under the bag.

This is just a thought and it may not be everybody's idea of  a useful idea. However, I am all for experimenting to get the best solutions available to the problems we face.

I hope you get lots of replies from people with ileostomies, who might have found more practical soltions.   

Best wishes

Bill    

Reply by warrior, on Sat Aug 24, 2019 7:27 am

good read Bill. Dunno about what a plug is. I do know there are mufflers available.. I agree he should speak to a stoma nurse. He should also note the foods he eats that make gas. Staying away from carbonated drinks will help. Forget beer. That's just asking for trouble. I can't see any reason to dialate. Check out stoma muffler.

Reply by Cplumber, on Sat Aug 24, 2019 7:39 am

Thanks everyone for your input. I struggle with gas lately and have had a illiostomy for 20years and never heard about dailation, plugs or mufflers.  Wow there’s hope

Reply by MOST52, on Sat Aug 24, 2019 9:49 am

Thank you for the replies.  I fully agree diet choices are crucial.  I have so many self-imposed restrictions already and have added another one, bananas!  What I’m experiencing lately is very loud noises when expelling thick stool.  That’s why I think my stoma is too narrow and dilation would help.  I did research and found a product called Dilastom, which can be used as a DYI approach.  I’m going to see if giving up bananas helps.  Thank you again, kind people!

Reply by warrior, on Sat Aug 24, 2019 10:11 am

h..well thick stool could be aaaA

MOST52 wrote:

Thank you for the replies.  I fully agree diet choices are crucial.  I have so many self-imposed restrictions already and have added another one, bananas!  What I’m experiencing lately is very loud noises when expelling thick stool.  That’s why I think my stoma is too narrow and dilation would help.  I did research and found a product called Dilastom, which can be used as a DYI approach.  I’m going to see if giving up bananas helps.  Thank you again, kind people!

his stupid web site! I was saying maybe u need more fluids to loosen that thick stool? When I,drink carnation instant breakfast, talk about shit thru a goose!. That will clean your pipes for sure. And it healthy for ya too. Still sounds like a gas issue. Good luck.

Reply by Tickpol , on Mon Aug 26, 2019 9:31 am

The rule of thumb I was given is that if your output "projects" (squirts like it's under pressure) from your stoma then it's time for a dilation.

Dilation might resolve some of the noise but as others have noted diet and a sound barrier (in that order) is the way to go.

 

Dave

Reply by warrior, on Mon Aug 26, 2019 12:46 pm
Tickpol wrote:

The rule of thumb I was given is that if your output "projects" (squirts like it's under pressure) from your stoma then it's time for a dilation.

Dilation might resolve some of the noise but as others have noted diet and a sound barrier (in that order) is the way to go.

 

Dave


that is an interesting rule of thumb. I never heard of that..i do remember my first few,days home after hospital, it did squirt like it,was under pressure... But that has subsided. Was like a water pistol man. Changing the water was a disgusting task. But again I all subsided now.

Reply by Immarsh, on Mon Aug 26, 2019 7:00 pm

Hi   friends,   My name is Marsha, and I have my ileostomy for over 50+   years, since I was a child of 15..  I was told ( adamantly) by my first surgeons,  never to put anything into my stoma....   To my knowledge, my doctor did that to me only once, when we thought I had a blockage ( which I did,   from poppy seeds).   He didn't go " deep" and it something that I never did by myself.    A lot of time has passed, and knowledge about digestion has improved and changed somewhat.   When I was younger,   I was able to each almost everything ( except raw, hard veggies like carrots or celery) and never had much gas.  But in recent year.....my stomach rumbles and I fill up with more gas that output.   I see quite a few different doctors for diffreent things, and the most helpful advice was ,   cut back on carbs and sugars, as t hey cause excess gas..     A very liquid output, can be a dangerous side effect of dehydration.... and it's importat to replace as much liquid as you're losing..    To date, the most helpful advice is to start taking a a good probiotic daily..   Gas, and very loose stool ( that isn't usual, is more a symptom of  an imbalance in the gut bacteria )   Since I started that a few months ago,   the gas, and rumbling have diminished, but haven't gone away...    The " stoma" is just the opening...... as was the anus before surgery.   Dilation isn't needed, unless there is a surgical problem.    The inside " small intestine",  is meant to process the food we eat......whether or not one has a colon.    A blockage along the route would only be diagnosed /  by visual,   x ray,  ultra sound, or CAT SCAN, and repaired with surgery.   NOT Dilation..     But I'm not a doctor....just been " treated by hundreds".   Best regards...   Marsha

Reply by MOST52, on Wed Aug 28, 2019 9:53 am

Thank you, Marsha.  It felt strange for me to ask a question, bc like you, I’ve had my Ileo for a long time, 68 Years!  I had a recessed stoma back in the 60s and was treated weekly with dilation, plus an injection of some sort next to the stoma.  It proved to be a bandaid approach bc I had an obstruction a couple years later and had a revision which effectively solved the problem.  Through the years I have experienced the normal stoma noises, like after eating, but nothing embarrassing, except for lately which prompted my post, and for a similar period of excessive noise about 4 years ago which was alleviated by removing two major stress situations from my life.  That time I went to a wound care place where the ET dilated to determine if there was blockage, there was none.

This time, no stress, so I’m baffled about the cause and possible remedies, so I reached out to get info.  Just bc it’s been 68 years doesn’t make me an expert, so that’s why I appreciate this site.  As I write this, I’m doing better.  I eliminated bananas from my diet, and I cut back on Vit D3, taking it on alternate days rather than daily.  The increased D3 was recommended by my primary dr. 2 months ago bc of blood test results.

 

Thank you for your input. I agree with everything you wrote.  

 

 

 

 

Reply by Dixie1, on Mon Sep 09, 2019 9:07 pm
warrior wrote:

h..well thick stool could be aaaA

MOST52 wrote:

Thank you for the replies.  I fully agree diet choices are crucial.  I have so many self-imposed restrictions already and have added another one, bananas!  What I’m experiencing lately is very loud noises when expelling thick stool.  That’s why I think my stoma is too narrow and dilation would help.  I did research and found a product called Dilastom, which can be used as a DYI approach.  I’m going to see if giving up bananas helps.  Thank you again, kind people!

his stupid web site! I was saying maybe u need more fluids to loosen that thick stool? When I,drink carnation instant breakfast, talk about shit thru a goose!. That will clean your pipes for sure. And it healthy for ya too. Still sounds like a gas issue. Good luck.


Thank You Most52!

I recently bought Carnation Instant Breakfast as often I am not hungry first thing in the morning, but know that I need something in the morning as I know it will be a long while before a break at work, and I couldn't figure out why I got so loose! Now I know I must be a goose! Good to know! I'll have to think of adding something to prevent it. For now it's in my cupboard I've stopped using it as I can't risk the leaks at work.

Reply by MOST52, on Tue Sep 10, 2019 1:46 pm

Hello Dixie1

i wouldn’t drink Carnation Instant Breakfast for the reasons you stated, but let me tell you what I’m doing to solve my problem.  I’m taking swigs of Muscle Milk, not a milk item.  It’s a protein drink and I drink about a half ounce every 3 hrs or so.  It’s expensive but if it helps you do whatever.  Thanks for your post!

Dixie1 wrote:
warrior wrote:

h..well thick stool could be aaaA

MOST52 wrote:Dixie1

Thank you for the replies.  I fully agree diet choices are crucial.  I have so many self-imposed restrictions already and have added another one, bananas!  What I’m experiencing lately is very loud noises when expelling thick stool.  That’s why I think my stoma is too narrow and dilation would help.  I did research and found a product called Dilastom, which can be used as a DYI approach.  I’m going to see if giving up bananas helps.  Thank you again, kind people!

his stupid web site! I was saying maybe u need more fluids to loosen that thick stool? When I,drink carnation instant breakfast, talk about shit thru a goose!. That will clean your pipes for sure. And it healthy for ya too. Still sounds like a gas issue. Good luck.


Thank You Most52!

I recently bought Carnation Instant Breakfast as often I am not hungry first thing in the morning, but know that I need something in the morning as I know it will be a long while before a break at work, and I couldn't figure out why I got so loose! Now I know I must be a goose! Good to know! I'll have to think of adding something to prevent it. For now it's in my cupboard I've stopped using it as I can't risk the leaks at work.



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