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What foods will I be able to eat after the ileostomy

Posted by NEWLIFE 56, on Thu May 05, 2011 6:17 pm
What foods do you eat? Also I don't have a large intestine so that compounds the problem.
What foods to stay away from that cause gas and how does the gas come out, does the pouch expand out, I know NOTHING about this. Consult is Fri-13th, yeah!!!! I dread this and also is anyone expericing acid..... I have alot of anal acid that keeps me raw and in pain, do you think or does anyone know if the acid will be like it is now with an ileo? Thanks to all.
Reply by Snowwhite, on Thu May 05, 2011 6:33 pm
Hi. I have an ileostomy. I only have about 3 feet of small bowel and nothing else. I say this because sometimes it depends on how much bowel you have and your disease. I do not eat anything that may get blocked. Do some research, talk to doctors and eat small frequent meals. It takes about a year for everything to settle down. Good luck.
Past Member
Reply by Past Member, on Thu May 05, 2011 7:38 pm
I've had an ileostomy for 11 years. Recum is removed....so no problems there. I eat whatever I want, even popcorn and nuts IN moderation. I don't recommend either in the beginning. Foods such as carrots, come out the same way they went in. Raw vegtables and greens make plenty of gas and should always be eaten in moderation as well.  Beano is terriffic to fight the gas, and yes the bag does expand. Foods that will block you are ANYTHING with skin !!! Peel tomatoes always, dried beans (especially large butterbeans are killer). I blocked the first time on Grapes !!! Second time on English Peas, third time on pulled pork Bar-b-que....I eat them still, but in moderation and I find eating potato's helps me alot. The starch seems to break food down or something. In the beginning the stoma and opening is so small, that blockage is almost a given at sometime, so don't be so scared, okay? You'll know and they'll give you I.V. fluids until it passes. Once it happens, it (well in my case) it stretches the stoma or the channel leading to it...I haven't blocked in over 6 years.

I know your afraid, with every reason to be. But I had much more trouble BEFORE my ostomy than afterwards. It will be okay, I promise. Once you get over the fear, and you will, you'll find what works best for you. For instance, I find that milk makes me very liquid and I avoid it if I'm going out, but have it if I'm prepared. Also, did they tell you that your stoma will move around ???? Boy, that freaked me out !!!LOL

If there's anything you want to ask, please don't hesitate. There's no subject too personal, okay?

Good luck, speedy recovery and the start of your new life...

Your ostomy sister, BEG
Reply by bes0642, on Thu May 05, 2011 8:21 pm
I've sent this link which has a good start as to what various foods will do for you.

http://www.ostomy.org/ostomy_info/pubs/food_ref_card.pdf

As far as the acid! I have an ileostomy now for 7 years. I do have a mucus discharge about every 3 to 4 days. Can't really say it's acidic though. Good luck wish you well. Hope this info helps. Bob
PJT
Reply by PJT, on Thu May 05, 2011 8:43 pm
I'm in total agreement with my friend  Brown Eyed Girl. No food is off limits but certain things like nuts, popcorn and pulpy fruits and vegetables need to be well chewed and eaten in moderation, perhaps with water or something to wash it down. Just this evening I was eating some balsamic glazed vegetables with dinner and I could feel in my mouth that the tomato skin was kind if chewy so I just spit it out before swallowing it. Over time you'll develop a sixth sense about this. Before my ileostomy there were so many things I couldn't eat any more because they just went right through me. Eating salad after my ilestomy was one of my greatest pleasures. Hope this helps.
Reply by NEWLIFE 56, on Thu May 05, 2011 9:52 pm
OH MY, a year...... I've been dreading this and now even more, my friend says I see it as a death sentence, I should be more positive, but at 56 I did not see this for my life and I live in FL with no family. My choice though they are all screwed up. My 2 son's are there as well, 32 & 34. I know this is real personal answer if you want. Did they remove your rectum also? How does gas come out, I read one lady and she uses www.just a drop.com or I wrote down ca so I don't really know which. Thanks and any thing else you can share would be helpful to a newbeeeeeeeee...... What products do you like best, why, why not. do you wear one of those belts? Tips???? one lady told me she uses a blow dryer and calaymine lotion and blows it dry, then puts on the waffer, or what ever it is called. Thanks in advance. My email is ****
Reply by NEWLIFE 56, on Thu May 05, 2011 10:00 pm
Thank you so very much. I will still stay on this site but I also have a herinated disc so I can't stay on this computer, it really hurts my neck. Another problem, I'm a mess at 56, having a poor is me day...... It moves around, what do you mean? And do you have acid that makes the area raw or did you have. My rear and around my whole b___ is raw like a piece of meat, very painful.
Thank you for your time.
Reply by NEWLIFE 56, on Thu May 05, 2011 10:05 pm
Thank you very much, will have to wait until tomorrow to look, been on the computer toooo long, my neck is killing me, I had a new refill of black filled and now it doesn't work so will go to the site when I can print. Thanks again!!!
Reply by NEWLIFE 56, on Thu May 05, 2011 10:07 pm
Thank you very much for the info, I really appreciate your time to answer.... this is a great site. Thanks again.
Reply by bes0642, on Fri May 06, 2011 12:18 am
I've been dreading this and now even more, my friend says I see it as a death sentence,

Newlife getting an ileostomy is not a death sentence! Sorry your friend is wrong. It's a different way of life. 500,000 people in the US have Ostomy's. It gives you life. It saved my life for sure. You should not be afraid. Yes, in the beginning it will limit your activities while you heal. Once you have settled in on the type of appliance you will need and how to prepare the attachment area your life will be better. I feel based on the type questions you are asking your trying to take on to much. You should be assigned a nurse that will help you to deal with the appliance initially. Relax! Have faith that all will turn out right. Quiz your Doctor get answers he owes that to you. I've had my ostomy 7 years now and it's just a way of live. I'm pleased that it has given me an opportunity to be with my siblings a few more years with out pain.  Best wishes and stick with this site to find out more about living with an ostomy. Bob

Why do we give other people permission to affect our attitude? We're the ones in control.

Permanent Ileostomy August 2005 due to Ulcerative Colitis
Reply by mooza, on Fri May 06, 2011 2:21 am
hey i also have lost all my large intestine and some small bowel have had lots of little blockages but i  lie down in bed until it unblocks itself and yes it is painful mainly liquid comes out kind of yellow stuff..Then bang feel great ..So i really eat what i like but try to watch out for somthings like onions leafy foods or i cut them up small and say a little prayer i also use ileo gel sachets i put 1 in the end of the pouch soaks up liquid... Somtimes its food somtimes im in pain for reasons i dont know ..I mainly take risks we are all different i once ate stone fruit for a day peaches apricots all with skin on and not one blocked up so that was my experiment  strawberrys nectarines and was fine but anytime i could get blocked so food is a risk i suppose hope all these posts are help full x
Reply by scotiaman, on Fri May 06, 2011 7:09 am
Hi Newlife....just a few thoughts with respect to having the illio...

- many people in here rather than having let themslves slip into depression because they required an illio, actually rejoiced because they no longer had to deal with an illness and after many years were able to enjoy life once gain. Its 90 % attitude and its your CHOISE.
- every persons ostomy expereince is unique, don,t get over anxious about others negative experiences. Most often they never explain their complications such as being overweight,diabetis, failure to follow dr's advisce etc.
- there isn,t much point of worrying about you diet at his point....you will have to eat soft foods that will digest easily in the first several months but over time you small bowel adjusts and you will process a greater variety of foods .... just don,t eat large chunky anything... your ostomy nurse will give you good advice.
- gas...it will happen.... you just deal with it. Beano can help, avoiding gaseous foods, watch what and how much you eat if you feel it will interfere with a specific social occassion
- I have had a stoma two years....its NEVER moved....havn,t a clue what that was about.
- I use coloplast 2 piece setup. You will learn how to set them up and you should NOT have acid coming in contact with you skin if it is done right....if you are overweight, it can create a challenge in keeping the seal tight...otherwise it should work out fine.
- MOST IMPORTANT ..... have a surgeon that comes highly recommended for his work in colo rectal surgery NOT a general surgeon. All the best....you will adjust and do just fine !!!!
Reply by jjMonaVie, on Fri May 06, 2011 10:33 am
                                 
NEWLIFE 56 wrote:
Thank you so very much. I will still stay on this site but I also have a herinated disc so I can't stay on this computer, it really hurts my neck. Another problem, I'm a mess at 56, having a poor is me day...... It moves around, what do you mean? And do you have acid that makes the area raw or did you have. My rear and around my whole b___ is raw like a piece of meat, very painful.
Thank you for your time.


I too was raw before my surgery.  I cannot express how different my life is now since my lleo.  Sure my life was great when I had no problems, but I did and I stayed as positive as I could thru those flare ups and still ended up in the hospital really sick.  I am so thankful to my amazing surgeon and his team.  A little shout out ot Dr. Micheal Ott.  I had a few minor set backs, can hardly remember them now.  I don't want to jinx myself, but only one minor blockage, I drank white grape juice and tea while laying in bed with my hand on my stoma for comfort.  I eat what ever I want, my only focus is health and weight and now have that under control and feel better then I have in about 10 years.  
I asked lots of questions to other ostomates about appliances and have stuck with Coloplast Sensura 2 piece, just recently moved to convex due to weight gain and now may move back as I have lost the stomach, but also figure why bother as long as it is working.    You will find the system and brand that works best for you.  The suplliers are amazing with samples and find a good stoma nurse and supplies store to help you.  My supplies store in London is awesome and sooo helpful.

About being scared, of course you are.  This is going to be a change and there may be some challenges on your road to recovery.  Use this site as there are so many people here to chat and help.  

When it gets tough try to think about all the ostomates on here who say, " I am so happy to live my life now" "I eat way more now then I did when I was sick"

There are alot of people who have no idea that I have an ileostomy, I wear a bathing suit, party, dance, it hasn't helped my singing though.  

Good Luck.  Stay in Touch.

ps just got a sample of the NA'Scent as this has been a concern for me and I LOVE it.
PJT
Reply by PJT, on Fri May 06, 2011 12:07 pm
NewLife56 -

Having an ostomy is not at all a death sentence as everyone on this site will tell you. If it was, I wouldn't be writing this right now, I would have never learned to play the piano,  never cooked tomato sauce on Sunday afternoons, never gotten married, or smiled the biggest, proudest smile as I watched my daughter dance on stage last weekend. We didn't choose it but it saved our lives. If God had given me a choice, I probably would have picked another sickness to deal with rather than Crohn's. (Maybe peanut allergies would have been easier - LOL). But it is human nature to adapt. And how lucky you are to have this great site to answer your questions and provide support.

After a short period of adjustment, I guarantee you (like most of us) will think, "Why didn't I do this earlier?

In answer to your question, I use the Sur-Fit 2 piece system and J&J Micropore tape. That's it. I change my appliance about every 6 or 7 days. I don't use a belt although I keep one in my desk drawer just in case my appliance gets loose. Actually I've only used it a few times. Tips? I have lots and I will try to compile a list at some point.

Hang in there and don't hesitate to ask ANYTHING! Good luck!

PJT
Reply by WOUNDED DOE, on Fri May 06, 2011 12:39 pm
Everyone in here is so awesome Smile  ...and great advice in every post.....I've had my ileo since I was 10, and now at 44 I am still learning the hard way that even though I eat almost everything, there is much I need to slow down and chew better and eat in smaller quantities at a time with lots of drinking in-between.....if I eat too much popcorn or peanuts I am in trouble....and if I go crazy with the mushrooms OMG they are like sponges in the gut and hard for me to pass.....but as long as I chop them up into teeny pieces and don't eat so much at once I am fine SmileSmile  A friend of mine taught me how to make a great mushroom soup and I have been addicted to it ever since.....but I need to be careful not to slam a whole bowl full in one sitting......everyone is different but just take it easy with questionable foods a little at a time.....all will be ok, I promise SmileSmileSmile
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