Hi JSD. I'm in the same boat and share your fear. Back in September, I was recovering from TNBC breast cancer (one of the worst types), double mastectomy and undergoing chemotherapy.
Five days after my third round of chemo, I had been having terrible belly pain which I and my doctors thought was "chemo belly." In fact, it was discovered that I had several diverticulitis perforated pockets filling my abdominal cavity with crap.
I went septic, was in critical condition, underwent emergency surgery at 3 am in the morning and woke up in intensive care unit with a stoma. In December, I developed a large parastomal hernia which surgeons said needed surgery, but I wasn't healthy enough to undergo a repair.
I have an appointment with a gastro surgeon in March to see if I'm a candidate for a reversal and parastomal hernia repair. I've been told that since all this happened 5 days after a chemotherapy session, my bowel resection might never be trustworthy. Chemo attacks all fast growing cells .... cancer cells, hair cells, and yes, even cells trying to mend the resected bowel.
It's a frightening thought to even contemplate the possible complications of a reversal. But at the very least, I need this painful pia parastomal hernia fixed, which would mean creating a new stoma on the other side of my belly and repair the old stoma and parastomal hernia site.
Glad I found this website. Wish I had the finances to become a full osteomate member but still trying to dig my way out all the bills. I take comfort reading the various posts because I realize I'm not alone on this journey. My husband has been a great source of comfort and help. I would be overwhelmed by all this without him ... so I also feel for those osteomates who are single. It's not an easy row to hoe under any circumstances.