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Irrigation question

Posted by mild_mannered_super_hero, on Wed May 11, 2016 10:00 pm

i learned by watching this video many years ago...

Reply by CH, on Wed May 11, 2016 10:13 pm

Thank you..I'll check it out! 

Reply by carol5, on Wed May 11, 2016 10:47 pm
CH wrote:

Hello..I'm new to this site and it sounds like we have a similar situation..I am interested in irrigation but have never tried it..I have all the supplies but not the courage! Any advice or suggestions? Thank you! 

I was really nervous as well but it turned out to not be bad at all.  I also watched a video several times and then did it exactly that way.  I used one with a real person doing in his everyday life, not a nurse giving a step by step.  I have been at it about a month now and I am having success now.  I went a whole week making it a full 24 hours until I had a bad day yesterday, but overall I think I am through most of the hurdles.  You just have to commit to doing it at the same time everyday no matter what.  Also the advice I got on this site about eating small amounts several times a day really worked well for me.  If I eat big meals, it just goes through me to fast.  I know I am going to have to be diligent about diet because I was never regular before and had loose stools, but it is worth it to me.  It has been freeing to get control back again and for the first time in a year, I think I will be able to teach without too much stress.  I'm looking forward to that.  

Reply by CH, on Wed May 11, 2016 11:15 pm

Thank you Carol..I appreciate your help...I'm still thinking about it and may give it a try..thank you! 

Reply by carol5, on Sun Jun 05, 2016 12:47 pm

Hi All,hope all is well with you.  I am doing great with the irrigation process now and committed to the same time everyday.  For the most part I make it the full 24 hours.  Thank you for all the advice, it has helped a lot.  My only problem now is that I have stomach aches about an hour after I eat anything ( I eat small amounts, several times a day). While if I pass a little gas, it gives some relief, I do not really feel gassy.  It feels more like my intestines are tender or irritated and it is just dense, achy pain.  I have played with foods and have found some things are worse then others, so I stay away but overall it seems that almost everything gives me this reaction to some degree.  I pretty much eat a high protein diet with no fresh veggies and fruit ( too much fiber is not a good thing for me as things easily run through me),and sometimes can get away with eating something for a while with minimal pain and then that stops working and starts to cause more pain, for instance eggs. They were my best food for a while and now can't eat at all.  Any ideas? Other than this problem, I love irrigation and the freedom it allows me.  I appreciate your advice, it has been so helpful. Take Care!

Reply by CH, on Sun Jun 05, 2016 2:07 pm

Hi Caro5...I'm  afraid I don't have any advice but I do have a question..I am thinking of starting irrigation soon but I'm concerned about some of the issues you're having becoming my issues. I'm wondering if you ever had reactions to certain foods before irrigation? I can ( and do!) eat anything and everything I want and have never had any stomach issues at all since my colostomy in 2014. I want the freedom but am kinda worried about this type of thing..thank you! CH

Reply by carol5, on Sun Jun 05, 2016 8:46 pm

I didn't have any real problems with food before irrigation once I got past the the first few months after surgery, however I have always been a little sensitive to food moving through me quick.  I discovered today that I have using water that is a little cool, so from now on I will check the temp.  I'm hoping that makes a difference.  I am also thinking I may see a dietician/ nutritionist for advice as irrigation is so much better then before and I want it to work.  Not giving up yet, you should definitely try it.  From what I can see, everybody is different.

Reply by CH, on Sun Jun 05, 2016 8:56 pm

Thank you! I want to try it so much I'm just nervous about the commitment of having to do it at the same time every or every other day..and I do so well with the bag in terms of eating whatever I want and just managing the bag in's just a big commitment in some ways. I'm really interested in all the pros and cons so thank you for any advice you may have! 😊

Reply by Bill, on Mon Jun 06, 2016 1:39 am

Hello carol. You are so right about everybody being different, which makes it important for people to experiment to see what suits them best. I suppose that goes for life ingeneral as well as dealing with stomas.

Best wishes



Reply by Bill, on Mon Jun 06, 2016 1:50 am

Hello CH.

Your nervousness is understandable but until you try something you will never know if it will work for you. I used to have to watch my diet very closely but since irrigation I eat more or less whatever I like without any adverse side effects, but as stated above we are all different. I'm having difficulty understanding why you would prefer having to tend to your bag during the day when the output can be so unpredicatable. Irrigation could free you from that chore and its associated potential disasters. What I found was that when I calculated the actual time I was spending tending to my bag during the day and night and compared it to the time spent irrigating - there was no contest! The irrigation takes up far less of my overall time, even though it can seem like an age when I'm actually doing it.  I distract myself by finding something else to do (writing) while the irrigation process is taking place which makes it more bearable and it then feels like time well spent.

There's pros and cons in almost everything we do but we don't usually know what they are for us until we have a go.

Best wishes


Reply by CH, on Mon Jun 06, 2016 1:57 pm

Thank you Bill...I'm having a hard time understanding that myself..haha. I think it's because I don't really spend that much time "tending" to the bag...I have adjusted pretty well to having it ( a year and a half) and I think my biggest concern is making sure that I am ready to commit to 45-min to an hour every or every other day to the irrigation process. I surely can see the benefits of not wearing a bag so if for no other reason than that I'm willing to try it. I appreciate all the encouragement on here and the more I read the more I know I have to try're right..if I don't try I'll never know!  CH 😊

Reply by Bill, on Tue Jun 07, 2016 1:22 am

CH.  It reminds me of the tee shirts that seem to be popular at the moment with the caption 'JUST DO IT' emblazoned across the chests.

Best wishes


Reply by veejay, on Tue Jun 07, 2016 5:24 am

"I love irrigation and the freedom it allows me"

What a great quote. It should be posted on all sites.....especially for all 'newbies'. 

Congratulations Carol.


Reply by CH, on Tue Jun 07, 2016 8:12 am

Haha...yes Bill...JUST DO IT...I think Nike made at famous...there's a "slash" ✅ (that's not it but you get it) that goes with that...maybe ours could have like an irrigation bag with wings! We should market that...SURELY we would sell those..haha. I can't say enough for how much I appreciate all of the encouragement...I am going to give it a try...and (fortunately or unfortunately)  y'all you will be some of the FIRST to know how it's going! Thanks again all! ❤️


Reply by CH, on Tue Jun 07, 2016 8:50 am

Once again my "emoji" turned out to look like a secret code..that was supposed to be a "Nike slash" that I was describing in my post about JUST DO IT! Smile CH

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