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Staying positive onwards and upwards!

Posted by Dita, on Thu Feb 02, 2017 2:15 pm

Ive only joined on here today and I am enjoying reading lot of the forum posts , you all seem lovely.

I had my illeostomy in 2010 and it was made permanent in 2012 because of so much complication.

2017 now and Ive got to say ive handled things pretty well ,  but recently I have just been feeling quite rubbish about it all!

This isnt like me as normally im fun loving, and brush things off but having an ileostomy has really started to annoy me!

Not much I can do because Im stuck with the illeostomy for rest of my life and I know I wouldnt be here if I didnt have it!

How do others cope when feeling a bit down about there situation?? xxx

Reply by NJ Bain, on Thu Feb 02, 2017 3:12 pm

Dita,

 

  Welcome to the site.  I'm glad you're enjoying the posts.

  Everyone copes a little bit different.  The only time I've felt down about having an ileostomy is when I had a leak or product failure.  It rarely happens anymore for myself but for others, it seems to be a constant.

  But like you, a lot of us wouldn't be here if it weren't for the ostomy.  Just don't let the ostomy define you.  It's a part of you now so the best advice I can give is to own it.

  And since you've found the site, you have even more support if you're feeling down or singled out and there is always someone willing to listen.  Someone has been there, done that.  We are all here for each other.

  So again, welcome and hopefully you find the answers and support you're looking for.

 

Bain

Reply by Bill, on Fri Feb 03, 2017 2:59 am

Hello Dita.

Welcome to the ostomy 'club' and to this site, where we can share our feelings on such matters as the stomatic life throws at us.

I think most ostomates have their ups and downs with regard to percieving life after the operation. However, once the adjustment takes place, we tend to live relatively normal lives under the new regime. I could go on for hours about my feelings in those early days but I tend to write rhyming verse to help me cope with the psychological and emotional impact of traumatic events. The results of my poetic writing on stoma isssues can be found in my blog posts. so if you are interested in one person's poetic ramblings about stoma issues, then they are all still available under my profile.

I hope you like the site and become a regular contributer, whether that be in corresponding or just reading the posts I'm sure you will get a lot out of participating alongside the rest of us.

Best wishes

Bill  

Reply by Dita, on Fri Feb 03, 2017 5:09 am

Thankyou very much for your post, I enjoy reading poems so I will take the time to read them thankyou , every little helps!

Yes will definetly become a regular contributor as I feel it is good therapy and besides that I really enjoy talking to people .

 

Thankyou and Best wishes

Dita  

Reply by Dita, on Fri Feb 03, 2017 5:32 am

Thankyou for your post Bain,

I agree totally with what you say, Its just a part of me I cant let it define me!

Its funny but normally when things are going well with jobs , studying  and family etc having an ostomy doesnt bother me at all.

In fact I pretty much generally forget I even have one , apart for obviously looking after it daily.

But I do find if Im having problems inother life areas , I tend to not be able to cope with having the ostomy it feels like the last straw having to deal with that as well ha! (it gets the blame for everything!!)

But onwards and upwards, thankyou for your reply nice to know there are people out there.

Alot of my friends dont know I have an ostomy , not that i deliberately hide it I just dont ever sort of have the conversation.

I met alot of my friends after the operation as I moved to wales so they didnt know me before.

So it great to be on this site,

best wishes

 

Dita

 

 

 

Reply by Mrs.A, on Sat Feb 04, 2017 5:41 pm

Hi Dita,

Welcome to MAO. It is truly a great place to come and read about what so many of us feel and do about situations with having an ostomy. Sometimes just knowing we're not alone in our troubles is enough, but it is awesome when someone's post helps another. I too hope you become a regular participant here to help in encouraging others as well as sharing your feelings and experiences.

Upwards and Onwards is a great way to keep it moving and not let something hold us back. It can be helpful to figure out why or what is trying to hold us back too, that way if it should ever make us feel down again we have a better understanding on how to deal with it.

Reply by Dita, on Sun Feb 05, 2017 4:35 pm

Thankyou Mrs A , for such kind and helpful words.

 

Reply by NotDeadYet, on Wed Feb 22, 2017 12:38 pm

Welcome, Dita!

When I feel a little overwhelmed by my colostomy, I come to this site!

After surgery I made sure my friends knew that I had a colostomy. Good friends will always be understanding and supportive, and they can be better friends by knowing me better. 

And sometimes my actions ("sorry, you can't use the little bathroom just yet. . .use the other one!") are far more understandable if they know what's going on.  Otherwise I imagine that they might wonder how I can seemingly fart through my belly button!

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